Here’s a list of some of the many online resources that might be able to help you dealing with cystic fibrosis. Keep in mind the importance of finding those that best suit you.
1. CF2Chat
CF2Chat is a forum and chat website for people with cystic fibrosis, featuring news, therapy and health tips, a photo gallery, and a recipe page.
2. CF Infants and Toddlers
CF Infants and Toddlers is a social media group for parents and caregivers of children with CF to share information and seek support.
Here are 6 cystic fibrosis organizations you should know about.
lets get some better treatment for CF in the UK
feel like we are being left behind 47 y.o. and still relying on Ciprofloxacin 500mg x 2 daily which i was taking when i was 16 y.o. iv not seen any new treatments over here(except dornase)?.Physios only show you how to wash your nebulizers when i was a kid we got postural drainage ,and inhaled salt we made ourselves.we still get nebusal 7% great improvements NOT ,so many died iv known may they rest in peace x