I have a love-hate relationship with doctors. Being born with cystic fibrosis (CF) has afforded me the opportunity to have experiences with several doctors throughout my life. Having a double-lung transplant seven years ago further opened a plethora of doctors’ doors. Both health circumstances have given me profound…
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Volatile organic compounds (VOCs) found in breath may be used as biomarkers of lung function and treatment response in children with cystic fibrosis (CF) and mild lung disease, a pilot study in France showed. The study compared breath composition before and up to six months after children initiated Kaftrio…
The Cystic Fibrosis Foundation is once again accepting applications for its Impact Grants, a funding initiative that offers $10,000 per year for up to two years to support programs that empower people living with cystic fibrosis (CF). Applications can be submitted via an online portal and…
The U.K. Medicines and Healthcare Products Regulatory Agency approved Alyftrek (vanzacaftor, tezacaftor, and deutivacaftor) as a cystic fibrosis (CF) treatment for patients ages 6 and older. The triple-combination CFTR modulator, developed by Vertex Pharmaceuticals, is indicated for patients who have at least one copy of a responsive…
Becoming educated and informed about cystic fibrosis is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CF journey.
There is no cure for CF yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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