BioNews Staff, writers and editors —

BioNews, the owner and publisher of this site, employs science writers and editors, most of whom have PhDs in the life sciences, as well as veteran journalists, who ensure stories are well-written and easy to understand. Our stories undergo a comprehensive fact-checking and editing process to confirm accuracy, objectiveness, and thoroughness in order to best serve our audience of patients and caregivers.

Articles by BioNews Staff

31 Days of CF: Let the Long-term Planning Begin

Photo courtesy of Jenny Humphries Day 9 of 31 This is Jenny Humphries’ story: I’ve always been a planner. I don’t make a purchase without researching every possible option. If I’m going on a trip, you better believe I have a detailed itinerary with pictures and multiple backup plans.

31 Days of CF: Self-acceptance Helped Save My Life

Stephanie Stavros, her son Grey, and husband, Jim (Courtesy of Stephanie Stavros) Day 8 of 31 This is Stephanie Stavros’s story: It’s been my experience that living with cystic fibrosis (CF) requires that you prioritize your mental health just as much as your physical health.

31 Days of CF: American Ninja Warrior and CF Warrior

Photo courtesy of Amber Dawkins Day 5 of 31 This is Amber Dawkins’ story: There are 182 pills, neatly organized in a plastic container, the days of the week labeled in bold on each of the small sections. Just enough medication to last for seven days. Inhalers, nebulizers, airway…

31 Days of CF: How I Maintain a Positive Outlook

Photo courtesy of Jen Kyle Day 4 of 31 This is Jen Kyle’s story: When I was diagnosed at age 37, I was at the height of my teaching career and newly married. It was a blow at first, learning new meds and routines along with learning…

Increased Education Crucial to Improving Rare Disease Care, Survey Finds

Healthcare providers involved in diagnosing and treating rare diseases believe that increased physician education and collaboration with specialized facilities will have the greatest positive impact on treating these conditions over the next five years, according to results from a 2021 survey. Definitive Healthcare, a healthcare commercial intelligence company, conducted…

Global Genes, Diversity Coalition Team Up to Advance Health Equity

Global Genes has partnered with the Rare Disease Diversity Coalition (RDDC) to advance health equity for rare disease patients and caregivers in underrepresented communities of color. “For rare disease patients, there are many challenges — and for people of color with a rare disease, these challenges are compounded…

Rare Disease Diversity Coalition Awards $600K to Combat Disparities

The Rare Disease Diversity Coalition (RDDC) awarded $600,000 in grants to ease the disparities faced by rare disease patients of color. These Impact Rare Disease Solution grants will go five RDDC steering committee working groups, which aim to identify problems for rare disease communities and advocate for solutions. The five…