A new U.S. initiative called Rare Disease Cures Accelerator–Data and Analytics Platform — dubbed RDCA–DAP — aims to accelerate…
Articles by Bionews Staff
A newly launched non-profit institute is seeking to advance research, and the development of new therapies, for people with rare…
Participation in clinical trials exposes rare disease patients to financial, physical, and emotional pressures, according to the results of a…
The National Organization for Rare Disorders, known as NORD, was named an official charity partner of the 2021 TCS…
The National Alliance for Caregiving, in partnership with Global Genes, has issued a free guidebook, available online, that…
Registration is now open for Global Genes‘Â 2021 RARE Patient Advocacy Summit. This year’s hybrid event will be livestreamed…
Registration is now open for the 2021 Rare Diseases and Orphan Products Breakthrough Summit, which will be held virtually…
More than 600 people participated in the 10th annual Rare Disease Week on Capitol Hill 2021, held virtually July…
The National Organization for Rare Disorders (NORD) is applauding the Biden administration for announcing a rule to protect…
AllianceRx Walgreens Prime, a specialty and home delivery pharmacy, is partnering with TailorMed, a healthcare technology company, to help lower…