Author Archives: Marisa Wexler MS

CF Registry in UK Collecting Data on COVID-19 Infections

During COVID-19, the U.K. Cystic Fibrosis Registry is taking steps to further the collection of data on how the ongoing pandemic is affecting people with cystic fibrosis (CF). The CF Registry, managed by the Cystic Fibrosis Trust, records data on patients in England, Wales, Scotland, and Northern…

Orkambi Helps to Promote Glucose Tolerance in CF Patients, Study Finds

Orkambi (ivacaftor/lumacaftor) can improve glucose tolerance in people with cystic fibrosis, a small study in patients either at risk of or newly diagnosed with diabetes suggests. The study, “Effect of one-year lumacaftor–ivacaftor treatment on glucose tolerance abnormalities in cystic fibrosis patients,” was published in the …


Featured Column

What It’s Like to Have a Family Member in the ICU

Main graphic for "Safe and Sound," Cystic Fibrosis News Today, by columnist Shelby Dell
Five years after her brother, Bradley, fought for his life in the ICU, columnist Shelby Dell reflects on how his hospitalization affected her.

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