As I’ve grown older, I’ve become a self-advocate, taking initiative when possible. I’ve developed a close relationship with my…
Articles by Tré LaRosa
I’ve been on Orkambi (lumacaftor/ivacaftor), a cystic fibrosis transmembrane conductance regulator (CFTR) modulator, for just over three years now. My…
Last in a series. Read part one and part two. The poster sessions at the North American Cystic…
Second in a series. Read part one. The poster sessions at the North American Cystic Fibrosis Conference (NACFC)…
First in a series. The poster sessions at the North American Cystic Fibrosis Conference (NACFC) in Denver this month…
As much as we resist the idea, cystic fibrosis can become a defining part of identity; a lifestyle that we’re…
If you read my column last week, you know I care a lot about the interpretation of words. The…
Speaking as a writer: Words wield heavy power. Our written and spoken words are capable of mightiness. They can impart…
I’ve noticed that there are two schools of thought in the CF community about discussing our life with a chronic…
A strange reality of living with cystic fibrosis (CF) is that we’re usually the only person with the disease we…