Author Archives: Tré LaRosa

Exciting Revelations from the NACFC 2018 Poster Sessions, Part 1

First in a series. The poster sessions at the North American Cystic Fibrosis Conference (NACFC) in Denver this month included many interesting branches of the wonderful world of CF research. In this column, I’ll share a short overview of an interesting poster from each topic to showcase promising developments.

Let’s Talk About What a CF Cure Really Means

If you read my column last week, you know I care a lot about the interpretation of words. The word “cure” holds tremendous gravity in the cystic fibrosis community and for scientists. It’s the Holy Grail of CF science and what we ultimately work toward. CF is a progressive…

Please Don’t Label Me as Sick

Speaking as a writer: Words wield heavy power. Our written and spoken words are capable of mightiness. They can impart life-changing wisdom or inflict pain, whether intentionally or unintentionally. I feel I must be transparent about life with cystic fibrosis so that I can use my experiences to share learned…

Is It Our Responsibility to Educate Others About CF?

I’ve noticed that there are two schools of thought in the CF community about discussing our life with a chronic disease. The first: If we expect others to be considerate and respectful of our circumstances, we must educate them about the intricacies of life with CF. The other: It’s not…

What Does It Mean to Be ‘Normal’?

A strange reality of living with cystic fibrosis (CF) is that we’re usually the only person with the disease we actively, directly engage with, aside from maybe siblings. The many aspects of routine CF care — preparing medications for the week, reconstituting antibiotics, Vest treatments, sterilizing nebulizers, IV antibiotic administration,…

Grieving in an ‘Always Online’ World

“So right now we live on borrowed time, I don’t know how long or what is to come in the next few months.” My sister Alyssa posted this sentence in a Facebook update when we learned that no options remained for her chronic rejection after a second lung transplant.

Featured Column

How I Discovered That PTSD Was Causing My Post-transplant Struggles

PTSD, mental health, communities, stress, grateful, work, trauma, rare disease day, transplant, CF community, National Blood Donor Month, birthdays, holidays
Columnist Lara Govendo addresses an issue that several readers may relate to: post-transplant PTSD, which can wreak havoc.

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