Author Archives: Wendy Caroline

The Existential Crisis of Going From Dying to Living

Imagine living your whole life knowing you have an early expiration date. Then you wake up one morning, and that’s no longer the case. Sounds great, right? Of course it is, but it’s so much more complicated than that. I never would have understood before living through it. Trikafta…

Which Is More Important: Physical or Mental Health?

When I was in high school, an informational book about cystic fibrosis made its way to me. As I read through it, I found a section on mental health. It stated something along the lines of, “Although CF carries a lot of emotional baggage, depression is not a common comorbidity.”…

The ‘5-year Plan’ Is Not for the Chronically Ill

In my last column, I addressed feelings I had about being unable to perform at the same professional caliber as my peers. One of the ways I have mentally adapted is realizing this: The “five-year plan” wasn’t created for the chronically ill. This “five-year” concept, a popular long-term…

An Open Letter to the Chronically Ill Professional

Dear Chronically Ill Professional, You are enough. It’s easy to look around and compare yourself to your peers. Maybe you didn’t get that promotion because you were sitting in doctors’ appointments instead of working overtime. Perhaps you aren’t living that “hustle” lifestyle because you need to slow down and…

Why My Service Dog Is Staying Home

COVID-19 has uprooted my life in many ways. Some are obvious, some are not. Like many people with disabilities, I have been in isolation since the outbreak began. Shortly after, an interesting topic came up among service dog handlers: Is it safe to use service dogs during this…

The US Healthcare System Desperately Needs Change

I am drained. My current situation astonishes me. The United States healthcare system must change. Over the past month, I’ve dealt with some severe and unusual health insurance issues. Before I continue, I want to make it clear that this is not an attack on our healthcare workers or any…

How Isolation Has Brought Calm to My Life

Self-isolation has caused an unexpected sort of peace to my daily life. Before you call me crazy, hear me out. I am usually constantly busy. I work several jobs, partake in countless hobbies, and fill silence with an active social life. I think that is the case for many young…

Trikafta Therapy Prompted the Most Unexpected Emotions

The excitement and flurry around the new combination therapy Trikafta (elexacaftor/tezacaftor/ivacaftor) brought a lot of hope to the CF community. This is a good thing. However, many complex emotions are not being addressed. Everyone expects a flood of challenging emotions when one transitions from healthy to dying, but what…


Featured Column

How I Discovered That PTSD Was Causing My Post-transplant Struggles

PTSD, mental health, communities, stress, grateful, work, trauma, rare disease day, transplant, CF community, National Blood Donor Month, birthdays, holidays
Columnist Lara Govendo addresses an issue that several readers may relate to: post-transplant PTSD, which can wreak havoc.

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