31 Days of CF

Photo courtesy of Sara Popescu Slavikova Day 21 of 31 This is Sara Popescu Slavikova’s story: Our baby turns 1 this month! She chose to be born in May, in the month of cystic fibrosis awareness, instead of in June, as expected. Last…

Photo courtesy of Marc Cotterill Day 20 of 31 This is Marc Cotterill’s story: My name is Marc Cotterill. I’m 39 years old and a business architect and creative from the U.K. I was born with a life-limiting condition, cystic fibrosis (CF).  Being…

Photo courtesy of Chloe Lussier-Labelle Day 19 of 31 This is Chloe Lussier-Labelle’s story: Hi! I’m Chloe Lussier-Labelle. As a 32-year-old with cystic fibrosis in Canada, I try to make the most of every moment, but my hardest fight has been growing old…

Photo courtesy of Bianca Maldonado-Dequin Day 18 of 31 This is Bianca Maldonado-Dequin’s story: My son, Esteban, was diagnosed with cystic fibrosis at birth 16 years ago. The doctor at the time talked about life expectancy, complications with this disease, multiple medications, and…

Photo courtesy of Teresa Sutter Day 17 of 31 This is Teresa Sutter’s story: “I don’t let my disability get in the way of me living my life.” I’m sure we’ve all heard iterations of this statement that, though well-intentioned, can cause feelings of guilt…

Photo courtesy of Toni Frehner Day 16 of 31 This is Toni Frehner’s story: My name is Toni, and I am a partner and caregiver in my 30s to someone with cystic fibrosis.  Colten and I met in high school, and after graduation,…

Photo courtesy of Alice Waters Day 15 of 31 This is Alice Waters’ story: Cystic fibrosis is one of those big, scary medical terms you grow up hearing about, but if you’re like me, you never knew what it was. That is, until I became…

Photo courtesy of Jessica Francis Day 14 of 31 This is Jessica Francis’ story: Eight years ago, I knew almost nothing about cystic fibrosis. When I joined the CF clinical research team at the University of Utah in July 2013, I had no idea that…

Photo courtesy of Jenny Livingston Day 13 of 31 This is Randy Hanks’s story: When I was young, I watched my mother pass away from a respiratory illness. I was crushed and vowed to never put myself in a position where I’d potentially lose someone…

Photo courtesy of Julia Mahoney Day 12 of 31 This is Julia Mahoney’s story: Bombs. That’s what CF means to me. I was in sheer denial, wasting away, sitting at 18% lung function. I needed new lungs and it didn’t resonate with me. …