Photo courtesy of Julia Mahoney Day 12 of 31 This is Julia Mahoney’s story: Bombs. That’s what CF means to me. I was in sheer denial, wasting away, sitting at 18% lung function. I needed new lungs and it didn’t resonate with me. …
Photo courtesy of Kirsten Decembrino Day 11 of 31 This is Kirsten Decembrino’s story: This is Tripp. When he was 10 days old, we received the news that he has cystic fibrosis. He had just come out of his first surgery to remove…
Photo courtesy of Morgan Polen Day 10 of 31 This is Morgan Polen’s story: When I was pregnant, I began looking for a book to help me understand what pregnancy with cystic fibrosis would be like. I found none. I located a few scholarly articles…
Photo courtesy of Emily Lefebvre Day 9 of 31 This is Emily Lefebvre’s story: The month of May is becoming special for me. Not only is it Cystic Fibrosis Awareness Month, but May includes Mother’s Day as well. Let me back up a…
Photo courtesy of Marquita Redd Day 8 of 31 This is Marquita Redd’s story: My name is Marquita, and I am an advocate for organ donation. My father had a liver transplant when I was 15 years old. When I was 17, right before I…
Photo courtesy of Todd Breland Day 7 of 31 This is Todd Breland’s story: I’m an artist, designer, skateboarder, surfer, and explorer. I also have cystic fibrosis and am a double lung transplant survivor. Diagnosed at 10, I was an active kid and thrived on…
Photo courtesy of S. Langland Day 6 of 31 This is Kristin Entler’s story: Cystic fibrosis is lonely. Not in the way all diseases are lonely. Not just the 2 a.m. “hacking into couch pillows” to keep from waking my partner upstairs, in quiet seconds…
Photo courtesy of Emilee Pehrson Day 5 of 31 This is Emilee Pehrson’s story: Philippians 4:13 says “I can do all things through Christ which strengtheneth me.” Maybe it’s weird to start off with a Bible verse, but this piece of scripture…
Photo courtesy of Tonya Lantis Day 4 of 31 This is Tonya Lantis’s story: Hello! My daughter, Amelia, came into this world at a crazy but perfect time for us. If you remember how October 2020 was going for the world, you know what I…
Photo courtesy of Lauren D’Amato Day 3 of 31 This is Lauren D’Amato’s story: Why must doctors feel more confident looking at charts and numbers instead of listening to their patients’ concerns? Despite what my medical charts may say, I have some stories that prove…
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