Columns

Poop is a hot topic in my household. For me, having cystic fibrosis (CF) means having pancreatic insufficiency. Therefore, I don’t produce enough digestive enzymes to break down my food. It’s a constant balancing act of ensuring that I take enough enzymes with higher fat foods and not…

I was extremely active growing up. I was the point guard on my elementary school’s girls’ basketball team and the catcher on the softball team. I had no problems playing entire games and participating in multiple practices each week. My cystic fibrosis (CF) physician always encouraged my mom to…

There’s a myth out there that “a healthy person has a thousand wishes, but a sick person has only one.” As someone with cystic fibrosis (CF), I’ve never had a body I could call healthy. At my sickest, I was bedbound for weeks at a time, unable to breathe.

I recently agreed to facilitate one of the Cystic Fibrosis Foundation’s CF Circles, which are virtual small-group discussions about a specific topic. The focus of this particular gathering was “Living with cystic fibrosis (CF) over 40.” After my double-lung transplant in 2020, I decided to take a…

As a Christian, I view this time of year as an opportunity to reflect on death and new life. Easter is a reminder of the miracle of Jesus’ death and resurrection, and I always find connections in that story to my transplant journey. The first year after my double-lung…

To follow my column last week about the rate of divorce after surviving advanced cystic fibrosis (CF) and double-lung transplant, this week I’ll focus on the intricate balance of living while dying. Don’t get me wrong, the improvement in my lung health since my transplant four years ago…

Note: This column describes the author’s own experiences with various vitamin supplements. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. My hair has been falling out. It’s most obvious in the shower, when I’m rinsing away shampoo and conditioner…

In a private Facebook group for adults living with cystic fibrosis (CF), a post jumped out at me asking if anyone had gone through a divorce after their double-lung transplant. The post instantly caught my attention because that’s my current situation. What disturbed me was the number of responses…

I’m so tired of some people’s responses to my suffering. I understand that some people might not get what I’m going through if they don’t have personal experience living with chronic illness. But I’d think they wouldn’t voice an opinion on something they know nothing about. Unfortunately, that’s not the…

As a child I was a kicker, the type no nurse wants to be near when wielding needles and throat swabs. Eventually I’d relax my shrieking when Mom or Dad held my hand and called me brave. The nurses were then more warmly received. To be safe, they came bearing…