Columns

March 4, 2019March 20, 2019

The Power of Escapism

Columns, Mutations & Conversations - a Column by Tré LaRosa

One of the first fiction books I read in adulthood was a book called “The Amazing Adventures of Kavalier & Clay,” by Michael Chabon. The story of how I ... Read more

March 1, 2019March 13, 2019

My Sexuality’s Ties to CF

Becoming Visible by Elizabeth Rogers, Columns

Sexuality is complicated. Sexuality when you have chronic illness is doubly so. Finding out who you are and what you may or may not be attracted to becomes a ... Read more

February 28, 2019March 15, 2019

Becoming Perfectly Confident in an Imperfect Body

Columns, Work that Works - a Column by Elly Aylwin-Foster

Picture the scene: You’re standing in front of a sea of faces about to present something. You’re a woman who’s 5 feet, 2 inches (OK, 5 feet, 1½ inches) ... Read more

February 25, 2019March 12, 2019

CF Science Is Unexpectedly Beautiful

Columns, Mutations & Conversations - a Column by Tré LaRosa

During my sophomore year of college, the background on my computer screen was a cystic fibrosis transmembrane conductance regulator (CFTR) protein, specifically a visualization of its quaternary structure. It ... Read more

February 22, 2019March 12, 2019

Evolving Toward Becoming Visible

Becoming Visible by Elizabeth Rogers, Columns

Doctors diagnosed me with cystic fibrosis (CF) at 18 months old and I recently turned 29. It’s safe to say I’ve never known a life without it. Growing up, ... Read more

February 21, 2019March 7, 2019

Taking Sick Leave Shouldn’t Cause Low Self-esteem

Columns, Work that Works - a Column by Elly Aylwin-Foster

During these last two weeks, I’ve felt the sickest I have in years. I was admitted into the hospital for a bronchoscopy, intravenous antibiotics, and continuous aminophylline infusion to ... Read more

February 19, 2019March 4, 2019

Brad Dell: The Man Without Fear, Almost

Columns, Victorious - a Column by Brad Dell

Imagine how much easier cystic fibrosis (CF) would be if we didn’t have fears. What if we stared death in the eye and laughed? Age 23 was destined to ... Read more

February 18, 2019February 27, 2019

CF Forces Me to Have a Different Long-term Outlook

Columns, Mutations & Conversations - a Column by Tré LaRosa

In high school, I aspired to be a pulmonologist for obvious reasons: I wanted to aid the CF community by directly helping patients. It seemed logical. I dreamed of ... Read more

February 13, 2019February 22, 2019

Sharing Life with CF on Social Media

Columns, This Lung Life - a Column by Ella Balasa

“Ella, you were at a bar?! I thought you were going to the hospital?” I received this perplexed (and perhaps skeptical) text after I posted a picture to social ... Read more

February 13, 2019February 25, 2019

An Open Letter to the ‘How Are You Feeling?’ Folks

Columns, Modern CF Mama - a Column by Janeil Whitworth

Dear “How are you feeling?” folks, Those of us with a chronic illness hear repeatedly — and secretly dread — questions such as the following: “How are you feeling? ... Read more

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