Columns

November 12, 2019November 13, 2019

Inspiration for Hire: Sick Candidates Only

Columns, Life in the Grey: a Column by Bailey Anne Vincent

At this time last week, I was crying. I was crying because I didn’t “want to let them down.” The potentially disappointed party in question was a new company ... Read more

November 8, 2019November 7, 2019

Addressing the Issues that Trikafta Benefits Will Bring

Becoming Visible by Elizabeth Rogers, Columns

It’s time to move forward. The recent approval by the U.S. Food and Drug Administration of the triple-combination treatment Trikafta (elexacaftor, tezacaftor, and ivacaftor) has sparked hope in the cystic ... Read more

November 4, 2019October 31, 2019

What We Should Expect from the CF Foundation’s ‘Path to a Cure’

Columns, Mutations & Conversations - a Column by Tré LaRosa

Last week, the Cystic Fibrosis Foundation launched a new initiative called “Path to a Cure.” A press release called it “an ambitious research agenda to deliver treatments for the ... Read more

October 29, 2019October 25, 2019

What to Do When Everyone Dies

Columns, Life in the Grey: a Column by Bailey Anne Vincent

Two of my friends are dead. And I’m scared. Recently, I lost two friends on the same day. One was in love with a dear friend of mine — ... Read more

October 29, 2019October 29, 2019

The Present Realizes the Past Through Travel

Columns, Victorious - a Column by Brad Dell

In my senior year of college, I wanted to be just like Dad. He’s a courageous traveler who has filled many passports and has eaten all sorts of weird ... Read more

October 28, 2019October 24, 2019

Giving My Anxiety a Name

Columns, Mutations & Conversations - a Column by Tré LaRosa

Lung function — typically measured by forced expiratory volume in the first second (FEV1) — is the boogeyman for people with cystic fibrosis (CF). Whether it’s our lung function, ... Read more

October 22, 2019October 18, 2019

Sick Food Diaries: A Day In the Life

Columns, Life in the Grey: a Column by Bailey Anne Vincent

9 a.m. I should be starting my day with the smoothie bowls that are stocked in my freezer. You can add gluten-free granola and honey to the pre-blended nutrients, ... Read more

October 15, 2019October 15, 2019

The Art of Not Helping

Columns, Victorious - a Column by Brad Dell

My head is in the clouds right now. I took a heavy sleeping aid about half an hour ago, and wooh, that stuff hits fast and hard. The sleeping ... Read more

October 14, 2019October 11, 2019

I’m Grateful for the Journey That Led to My Service Dog

Columns, Path Unknown - a Column by Wendy Caroline

I entered through the hospital doors and walked about 30 feet before becoming completely out of breath. I had a split second of panic before I remembered the heavy ... Read more

October 14, 2019October 14, 2019

Preventing the Spread of Misinformation

Columns, Mutations & Conversations - a Column by Tré LaRosa

A few weeks ago, an article with the headline, “Vertex sinks on reports of deaths of patients taking cystic fibrosis drug,” circulated online. The medication in question was Symdeko ... Read more

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