Columns

May 2, 2019April 30, 2019

Being Brave and Making a Meaningful Connection

Columns, Las Cosas de la Vida - a Column by Luisa Palazola

The cystic fibrosis (CF) community was in an uproar during the lead-up to the release of the film “Five Feet Apart.” Viewers had many reactions, such as the following: ... Read more

May 2, 2019May 9, 2019

Not All Work Is Paid: Reflections on Self-value with CF

Columns, Work that Works - a Column by Elly Aylwin-Foster

Growing up, I was lucky to attend school almost entirely uninterrupted by cystic fibrosis. I didn’t see the inside of a hospital for more than occasional appointments until I ... Read more

April 30, 2019April 26, 2019

Here’s What It Feels Like to Have Cystic Fibrosis

Columns, Victorious - a Column by Brad Dell

There’s a rattle in my chest when I inhale. I sweat and dig my nails into my palm. I feel it, microseconds of dread and fear as the rattling ... Read more

April 29, 2019April 25, 2019

As a CFer, Birthdays Remind Me that Life Is Fragile

Columns, Mutations & Conversations - a Column by Tré LaRosa

I can remember the day I discovered the truth that I had already suspected in my heart: cystic fibrosis (CF) is a life-shortening disease. I’m just old enough that ... Read more

April 26, 2019April 25, 2019

Don’t Discriminate Against Disabilities and I Won’t Police Your Politics

Columns, Life in the Grey: a Column by Bailey Anne Vincent

I am not a political writer. I am a political person, don’t get me wrong. I have no shame in calling myself “political” because I think that anyone with ... Read more

April 26, 2019April 24, 2019

I’m Thinking About the Future

Becoming Visible by Elizabeth Rogers, Columns

Sometimes it seems as if everyone knows what they would do in your shoes, and they are happy to tell you so. “If I were you,” they might say, ... Read more

April 22, 2019April 18, 2019

We Must Pay Closer Attention to the Global CF Population

Columns, Mutations & Conversations - a Column by Tré LaRosa

Based on the stringent qualifications the Cystic Fibrosis Foundation uses to determine who has cystic fibrosis, approximately 70,000 people currently have CF worldwide. That includes 30,000-35,000 in the United ... Read more

April 18, 2019May 9, 2019

Can We Take a Minute to Rest?

Columns, Work that Works - a Column by Elly Aylwin-Foster

Reader, I am tired. I don’t need to explain how that feels to those who have cystic fibrosis (CF), but for the benefit of others, I will. It’s a ... Read more

April 17, 2019April 18, 2019

How I’ve Found Purpose Without Having a Full-time Job

Columns, This Lung Life - a Column by Ella Balasa

Our society places great emphasis on success through careers. Whenever we meet a stranger, one of the first questions we ask is, “What do you do?” I feel this ... Read more

April 17, 2019April 17, 2019

CF ‘Mom Guilt’ Is Hard, but My Best Is Good Enough

Columns, Modern CF Mama - a Column by Janeil Whitworth

“Up, up, up!” my 1-year-old said to me the other day with both hands reaching to the sky. I was having a really bad day, and I was tired and ... Read more

Pin It on Pinterest