Columns

September 3, 2019August 28, 2019

I’m Learning to Celebrate the Imperfect Milestones

Columns, Life in the Grey: a Column by Bailey Anne Vincent

There are a lot of things I haven’t done. Things the internet says I should. I’ve never announced a pregnancy to overjoyed family members. Instead, I was a junior ... Read more

September 3, 2019August 29, 2019

The Kind of Friend We Deserve

Columns, Victorious - a Column by Brad Dell

When I met Alexander, he was thin, his nose bled a lot, and he had tubes in his ears. I was a lonely first-grader fresh to Hawaii, and just ... Read more

August 27, 2019August 22, 2019

Processing My Pain Was Necessary for Me to Heal from Years of Hurt

Columns, Victorious - a Column by Brad Dell

In the days after I got new lungs, I’d pray for the healing to move faster so I could get on with life. I’d stand in front of a ... Read more

August 26, 2019August 22, 2019

I’m Failing the System and the System Is Failing Me

Columns, Life in the Grey: a Column by Bailey Anne Vincent

“There’s no other way to paint it. I’m in pain. That’s my life. And no one can help me.” That was what I texted my husband after the third ... Read more

August 26, 2019August 22, 2019

The Resiliency of the Human Spirit

Columns, Mutations & Conversations - a Column by Tré LaRosa

Few phenomena fascinate me more than human happiness. So often we get caught up in the idea that we would be happier if so-and-so happened. I’m sure I won’t ... Read more

August 23, 2019September 25, 2019

Can We Talk About CF Pain?

Becoming Visible by Elizabeth Rogers, Columns

We need to talk about pain. Growing up, there was a clear delineation in my mind: Cystic fibrosis (CF) could be painful sometimes, but it wasn’t a disease that ... Read more

August 20, 2019October 2, 2019

I’m Worried Sick About My Family

Columns, Life in the Grey: a Column by Bailey Anne Vincent

At night I lie awake and I worry about you. I worry if you’ll drive home safely that night. If the ache in your chest is really a ticking ... Read more

August 19, 2019September 19, 2019

Why the CF Community Should Be Concerned About Climate Change

Columns, Mutations & Conversations - a Column by Tré LaRosa

Climate change is an emergency facing humanity. As we continue to burn fossil fuels and release greenhouse gases, solar heat levels build up in the atmosphere, which acts as ... Read more

August 16, 2019September 25, 2019

I Can’t Visualize My Video Game Characters Without Cystic Fibrosis

Becoming Visible by Elizabeth Rogers, Columns

I have what some might call a bad habit. I can easily spend hours a day playing video games. My favorites are role-playing games that allow me to create my ... Read more

August 14, 2019September 25, 2019

When Will I Be ‘Sick Enough’ for a Transplant?

Columns, This Lung Life - a Column by Ella Balasa

On some days, the motivation to pedal a stationary bike and feel the burn and breathlessness for 20 straight minutes is buried under a layer of mucus lining most ... Read more