After a monstrous letdown, we need a win. Those of us with chronic illness need reminders to keep on keeping on. The glimmer of hope for better days is ... Read more
I have gained weight. I’ve been trying to gain weight for years, kindly encouraged by my CF clinic. Many might find it odd that aiming for a mid- to ... Read more
Dear Chronically Ill Professional, You are enough. It’s easy to look around and compare yourself to your peers. Maybe you didn’t get that promotion because you were sitting in ... Read more
Privilege. Everywhere we look, we see the word privilege, and it’s hard not to feel attacked or defensive for what we feel we can’t control, right? Poor me and ... Read more
I open my eyes, and the walls around me blur like a mirage. I whisper through my post-intubated raw throat: “Did it work?” My nurse replies: “No, they weren’t ... Read more
I have never liked the term “chronic pain.” Or at least I never used to identify with it. To me, chronic pain was something hashtagged online for those who ... Read more
Sometimes I want to give up. This is awful to say and even sillier to admit. But it’s something I’ve been repeating more and more lately. Someone recently asked ... Read more
When feeling hurt or sad, I find my escape in rereading the books of my youth. They divert my mind from my woes and remind me that at least ... Read more
In my previous life (pre-double-lung transplant) I was the bravest I’ve ever been. Before my transplant, the most important piece of my identity was bravery. I was brave in ... Read more
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