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In the first few days after my double-lung transplant in 2020, I was looking at a hand-held mirror and saw a central venous catheter protruding from the left side of my neck. A large, bulky bandage covered the right side. Little did I know then that the bandage represented something…

I have a love-hate relationship with doctors. Being born with cystic fibrosis (CF) has afforded me the opportunity to have experiences with several doctors throughout my life. Having a double-lung transplant seven years ago further opened a plethora of doctors’ doors. Both health circumstances have given me profound…

I can still envision it: The top half of the wall was painted a shade of beige, while the bottom half was covered in blue wallpaper with white stripes. That’s how I remember the room where, at some point during my childhood medical appointments, I’d step into a clear box…

The power of water is underrated. If you Google it, you’ll see you can delve into multiple aspects of water’s properties, including how it supports thermal energy, hydropower, transportation, and anti-erosion efforts. It’s a universal solvent (because of its molecular structure), it’s often symbolic (as in the Bible), and…

Several pieces of my life puzzle happen to be rare. First thing’s first: I have cystic fibrosis (CF), a rare disease that affects about 40,000 people in the United States. (The U.S. Food and Drug Administration considers a disease rare if it affects fewer than 200,000 people.)…

“Mommy, what was that?” The wind whistled against our house, reaching 50 mph. We’d already lost power once in a precautionary outage. Meanwhile, communities less than an hour from our home were burning to the ground. While we weren’t in imminent danger, I was worried. As a native of Southern…

Is it just me, or did January feel like an entire year all on its own? From drastic political shifts to devastating wildfires, extra-cold temperatures to egg shortages, a surge in influenza activity to outbreaks of tuberculosis, 2025 has been exhausting so far. On top of everything, I feel a…

I’m willing to bet that when people perform random acts of kindness, they’re not so random. It comes from the heart’s desire to do something kind for people. I also think it’s a matter of paying it forward. I know that when others do something kind for me, it ignites…

“It’s been over a month and I don’t feel right,” I tell my mom as we’re making dinner. She’s mixing Caesar salad dressing and Parmesan cheese into the fresh lettuce I bought from the farm stand. I rub my rib cage where it’s sore, then slowly lift my arms above…

It’s extremely expensive to have cystic fibrosis (CF), as I do. It’s extremely expensive to have any chronic illness. It’s extremely expensive to be sick. I’m beginning to wonder if the system has been accidentally rigged against those of us who are ill, no matter what we do.