“I want to have a baby girl with pink hair and a baby boy when I’m a mommy,” my daughter, Claire, boldly announced as I was cooking dinner the other night. She’s a lot like other 5-year-olds, dreaming of her baby dolls coming to life — except she has…
Columns
There’s a video buried deep in my phone’s memory from seven years ago. It shows me driving on the Blue Ridge Parkway in the summer, the leaves full and making a canopy of shade over the road. The moonroof on my Honda, the car I still drive today,…
During my three-year hiatus from my column, I endured the following: A cervical spine disk replacement, a sacroiliac (SI) joint fusion, a hip fracture, a second SI joint fusion (repair of the faulty first), a lower leg nerve decompression surgery, a surgery to replace a disk in my…
They say that the older you get, the faster time passes. At 53 years old, I completely agree. As I look back at the columns I’ve written in the past, I can’t believe we’re approaching the holiday season again. Don’t get me wrong — I’m thankful for it.
Since my double-lung transplant seven years ago, I’ve struggled with breathlessness during exercise. I was used to this symptom while living with cystic fibrosis (CF) lungs, but I didn’t expect to deal with it post-transplant. It’s been frustrating that I can’t use my healthy lungs in the capacity that…
My name is Bailey Anne Vincent, and I am still alive. Hi. It’s me. I’m the problem. (Courtesy of John LaBarbera Photography) Three years ago, I was a long-running columnist here at Cystic Fibrosis News Today, writing about what I like to call “anyone who isn’t genetically…
Some days, I wish I were a bird
A pod of pelicans flies over my head, then out over the ocean waves, where they skim the surface of the water. One in the middle of the mass pumps its wings, and the formation follows suit like a ripple effect in both directions. I’m struck by the gracefulness it…
Many of the thoughts that cross my mind daily are specific to cystic fibrosis (CF). Recently, I’ve recognized that they’re not things that most people, including my family and healthy peers, have to think about. I’m not upset that the following topics are frequently on my mind. It’s just…
Over the years, I’ve had many experiences with disability accommodations, for better or for worse. I was born with cystic fibrosis (CF) and have had health challenges my entire life. After my double-lung transplant seven years ago, my health improved in some areas and declined in others. But one…
After a particularly stressful six months, I hit a breaking point a few weeks ago. I was finding myself constantly overwhelmed by life. I still feel that way to an extent. School activities, schedule changes, and behavioral issues with my kids send me into a tailspin. Work deadlines haunt me…
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