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It’s extremely expensive to have cystic fibrosis (CF), as I do. It’s extremely expensive to have any chronic illness. It’s extremely expensive to be sick. I’m beginning to wonder if the system has been accidentally rigged against those of us who are ill, no matter what we do.

I just celebrated another year on this planet in December. My birthday has become a time of deep reflection as I age with cystic fibrosis (CF), sprinkling in an added layer of life with a double-lung transplant. Now I’ve turned 38; I’m growing older. I don’t have gray hair…

“I hate my treatments. I don’t want to have cystic fibrosis anymore.” That statement came during a recent night with my daughter, Claire, who has the disease. I was trying to persuade her to complete her breathing treatment, but I was facing resistance. As parents of a…

I think the “if you just” culture is hurting sick people. Have you heard sentences that start with “if you just”? They often end by oversimplifying an issue that’s likely not that simple. I’m sick of oversimplifying health. The “if you just” culture is a bit like when someone…

This month, my beautiful daughter, Claudia, will celebrate her 29th birthday. I was 24 and living with cystic fibrosis (CF) when I became her mother. It’s now been four years since my double-lung transplant, and I’m currently fighting COVID-19 for the fourth time in four years. As the…

I thought about my immune system in a completely different way before my double-lung transplant seven years ago. Boosting my immune system to fight infections was par for my course, given the cystic fibrosis (CF) in my lungs. Now, it’s dangerous to boost my immunity too much. Finding a…

As a proud son of New Jersey who’s married to a woman who’s half Italian, I’ve found that fresh mozzarella is a key to happiness in life. I’ve never had a bad day when I’m eating said cheese. I could give you recommendations for the best mozzarella in northern New…

The other morning, I was startled awake by the sound of my insulin pump screaming for me to change a part of my infusion set. That happens regularly with my Omnipod system, which I use to provide insulin for my cystic fibrosis-related diabetes. Omnipod sets off an alarm…

It has been a year. From an underwhelming season of “Vanderpump Rules” to a historic rap battle, the world has navigated a roller coaster of emotions and events. The highs of me being a huge Kendrick Lamar fan were matched by the lows of simply opening a news website or…

The end of 2024 is upon us, which means it’s time to reflect on the past year and evaluate ourselves and our decisions. It’s also a time for resolution — the promise to implement positive life changes in the new year. Many New Year’s resolutions focus on exercise, with goals…