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I nearly fell asleep in the bath the other night. It was after a particularly hard day with my daughter, Claire, who has cystic fibrosis (CF), and I was exhausted. The night had ended in screaming and tears once again. In the last few weeks, it feels like there’s…

I am a strong advocate for organ donation because I was on the receiving end of a double-lung transplant in 2017. Not only did it save my life, but it also radically transformed my health in many ways. Since then, I believe it’s imperative to clear up some…

At 31, I still love basketball, and I’ve been a New York Knicks fan for 25 years. For the first 21 years of my fandom, the franchise was a model of instability and getting in its own way. I try to approach my health in the exact opposite manner, which…

I’ve had so many surgeries that I’ve lost track. You’d think I’d be used to the routine by now, but I’m not. With each surgery comes more anxiety as my trauma stacks up. I was convinced it’d get easier as I underwent more procedures, but I’ve learned that each…

“We could go to the beach,” my mom says as the two of us sit on her screened-in porch in Alabama. It’s spring break, and because I’m picky about who can stick me with a needle, I’m at my parents’ house to get my port flushed by my regular nurse.

If I didn’t have cystic fibrosis (CF), I’d be rich. This thought has crossed my mind many times throughout my adult life. While I can’t prove I’m right, I know I’ve certainly spent an absurd amount of money on CF-related expenses. Living with CF has had many physical,…

“Everything will be fine. You just have to stay positive.” Ever heard this idea while dealing with a chronic health condition? If so, you’re not alone. Born with cystic fibrosis (CF), I’ve had a life filled with difficult health challenges. Contrary to popular belief, my symptoms…

My husband and I sit in the same waiting room we did years ago when our daughter, Claire, was a newborn. A similar sense of anxiety washes over me as I watch for her pulmonologist to emerge from the operating room. Claire was undergoing a bronchoscopy, a procedure to…

Six years ago, I had a double-lung transplant because of severe cystic fibrosis (CF). I found the process traumatic, mostly because I didn’t feel prepared. I wish someone had taught me all the things I learned during that season of my life. To help others on a transplant…

The day my children entered the world I felt responsible for their future path in life. As they have grown, I’ve helped them learn age-appropriate skills to hopefully enable them to be independent, successful adults. Like most parents, I teach my kids the basics, such as how to walk, use…