The Patient's Perspective - a Column by Reid D'Amico

reid patient's

At the time of writing this column, Reid had started his PhD in biomedical engineering at Vanderbilt University. He uses an engineering approach to research pulmonary hypertension. Reid has CF, and finds much of his drive by experiencing both the research and patient aspects of cystic fibrosis. Reid has also served as a director at the U.S. Adult Cystic Fibrosis Association.

The Epithelium Sodium Channel and Cystic Fibrosis

Cystic fibrosis is a complicated disease. As patients, we are taught that mutations in our cystic fibrosis transmembrane conductance regulator (CFTR) proteins are what lead to many of our symptoms and disease trajectories. However, research has shed light on many other proteins and biological processes…

The Beginning of a New Year with Chronic Disease

Some resolutions are common to all: Work out more, eat healthier, make grandiose changes, or check off an important goal. And with resolutions comes the comical attitude that many of us will fail to carry them out for more than a few weeks. However, as cystic fibrosis (CF)…

Struggling to Let Others In

Cystic fibrosis (CF) is unpredictable. Some days I feel like I can run my fastest personal mile, and on others I feel like I’m staring at the treadmill waiting to hit my goal distance. I’m a person who likes to find patterns in things — from patterns…

Allergan and Zenpep Rumors: Researching the Truth

In August, Allergan pharmaceuticals announced in a letter to healthcare professionals that it would be restructuring its sales force to align with the “evolving needs of our broad product and consumer portfolio.” Because of these changes, Allergan said that some of the sales professionals in clinics…

Importance of Turning to Others for Advice

Cystic fibrosis (CF) is horrible. Say it again for the people in the back: It is horrible. To be transparent, I’m writing this article in a bad mood, so naturally, I look to my diagnosis as a means to understand my frustration. I don’t believe this is unfair…

To Treat CF, Understand CF: A Talk with Novoclem Therapeutics

Perhaps one of the most exciting parts of being both a patient and a scientist with CF is seeing just how quickly the field is growing. And fortunately, you don’t need an “insider’s knowledge” to see the changes. The CFF Pipeline to a Cure ably captures the exciting eruption of companies…


Featured Column

The Benefits of Being Sick

A banner for Lara's column, depicting a car on a road trip winding through a forest.
As columnist Lara Govendo reflects on her journey through CF and transplant, she realizes there are a surprising number of benefits.

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