The Patient's Perspective - a Column by Reid D'Amico

reid patient's

At the time of writing this column, Reid had started his PhD in biomedical engineering at Vanderbilt University. He uses an engineering approach to research pulmonary hypertension. Reid has CF, and finds much of his drive by experiencing both the research and patient aspects of cystic fibrosis. Reid has also served as a director at the U.S. Adult Cystic Fibrosis Association.

Vertex Trial Results and the Importance of CFTR Therapeutic Diversity

The CF community was delivered great news the other week: Vertex’s tezacaftor/ivacaftor combination treatment significantly increased lung function (ppFEV1) in patients 12 years or older with certain mutations of the CFTR gene (cystic fibrosis transmembrane conductance regulator).F 508 For those who are new to, or not…

Bad Clinic Visits: It’s Not Just the Numbers

No matter how good I feel, there’s always a sense of anxiety and uncertainty when I walk into a routine CF clinic visit. Thoughts swarm my head as my name is called to walk back into the office: What if my PFTs are down? What if my blood tests…

Five Tips for Flying with Cystic Fibrosis

Airports can be stressful. With the unpredictable delays, cancellations, and upsets of travel, it’s only natural to take some precautions before going on a business trip or vacation. However, preparing for travel becomes inherently more complicated when the traveler has a chronic illness like cystic fibrosis. I wish…

Keep an Eye on the ACA and Share Your CF Stories

By now, we’ve all heard that steps have been taken toward repealing the Affordable Care Act (ACA). Even within my network of friends and family, I’ve heard mixed responses. There are those who detest the ACA, those who believe it should be protected, and those who think it should be…