Get regular updates to your inbox.
Drug development companies such as NovaBiotics that are devoted to designing and developing treatments for patients with difficult-to-treat, medically unmet diseases are often faced with the hurdle of recruiting enough patients to conduct the clinical trials necessary to approve new treatments. Recently, the hindrance has…
Development-stage drug development company, Parion Sciences, just announced a generous donation from the Cystic Fibrosis Foundation Therapeutics (CFFT) organization worth $3 million. This funding will be allotted to further research on the company’s latest experimental product for cystic fibrosis (CF) — a genetic and incurable…
Jess Harrison is a 17-year-old cystic fibrosis (CF) patient who was diagnosed when she was only a baby at 18 months, like so many other patients. The difference is that she — as well as an increasing number of children and teens with the disease — decided to do…
Claire Wineland The inspiring story of a child’s tenacious battle with cystic fibrosis (CF) was the force behind the founding of a non-profit organization with a mission to give much-needed emotional and financial support to children diagnosed with CF and their loved ones. Claire Wineland, now 17 years…
An incredible audio recording of Mozart’s Le Nozze Di Figaro featuring a slideshow of pictures has been making its rounds on YouTube since it was uploaded on August 11, 2014. The beautiful vocals and pictures belong to 27-year-old aspiring singer, Wiktoria Lachowski of Calgary, Alberta — a cystic fibrosis…
Cystic fibrosis is among the numerous chronic conditions categorized as rare diseases. As many cystic fibrosis patients know, a unique set of burdens are placed upon themselves and their caregivers, and Atlantis Healthcare is working to bring light to patients’ hardships. Recently, Atlantis Healthcare released a white paper with…
Creative Electric (CE), a performance company in Scotland, is launching a fundraising effort to support a new project, a theatrical performance entitled, “HEY, I’M ALIVE!” that gives voice to a character who suffers from Cystic Fibrosis, according to a recent post on the North Edinburgh News (NEN) website.
For Irish couples, trying for a baby can be a source of anxiety because of their ethnic predisposition to a hereditary, debilitating disease of the mucous glands known as cystic fibrosis (CF). Statistics show that 1 out of every 19 Irish adults carries the gene for this condition, and…
Combining sporting events, socialization, and awareness campaigns has always been a great way to involve more people in supporting a cause. Whether it’s running a marathon, completing a workout, or doing cross-country biking, injecting an element of fun into supporting a serious disease has become…
One of the major concerns of cystic fibrosis (CF) patients worldwide is their dangerous predisposition to lung infections. Because of difficult to manage mucous build-up in their airways, incidences of viral and bacterial respiratory infections can become life-threatening — especially if it is an overgrowth of…
Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.
Get regular updates to your inbox.