News

Cystic Fibrosis Therapy Lynovex Granted Orphan Drug Status

Drug development companies such as NovaBiotics that are devoted to designing and developing treatments for patients with difficult-to-treat, medically unmet diseases are often faced with the hurdle of recruiting enough patients to conduct the clinical trials necessary to approve new treatments. Recently, the hindrance has…

27 Year Old With Advanced Cystic Fibrosis Sings Mozart

An incredible audio recording of Mozart’s Le Nozze Di Figaro featuring a slideshow of pictures has been making its rounds on YouTube since it was uploaded on August 11, 2014. The beautiful vocals and pictures belong to 27-year-old aspiring singer, Wiktoria Lachowski of Calgary, Alberta — a cystic fibrosis…

Unmet Patient Needs in CF Highlighted by Atlantis Healthcare Report

Cystic fibrosis is among the numerous chronic conditions categorized as rare diseases. As many cystic fibrosis patients know, a unique set of burdens are placed upon themselves and their caregivers, and Atlantis Healthcare is working to bring light to patients’ hardships. Recently, Atlantis Healthcare released a white paper with…

Edinburgh Drama Troupe Crowdfunding For Cystic Fibrosis Performance

Creative Electric (CE), a performance company in Scotland, is launching a fundraising effort to support a new project, a theatrical performance entitled, “HEY, I’M ALIVE!” that gives voice to a character who suffers from Cystic Fibrosis, according to a recent post on the North Edinburgh News (NEN) website.

Boomer Esiason Foundation Launches New CF Biking Event

Combining sporting events, socialization, and awareness campaigns has always been a great way to involve more people in supporting a cause. Whether it’s running a marathon, completing a workout, or doing cross-country biking, injecting an element of fun into supporting a serious disease has become…