The Cystic Fibrosis Foundation, the country’s leading not-for-profit organization dedicated to finding better ways to control and cure CF, has just launched a completely redesigned website at www.cff.org. The organization noted that the website redesign is a result of the CFF’s unwavering determination of its mission, which is to provide patients and…
News
PARI Respiratory Equipment, Inc., a leading, worldwide developer and manufacturer of fast and efficient aerosol delivery systems for patients with asthma, chronic lung disease, cystic fibrosis, RSV, VAP, and HAP, recently reported on important news concerning its therapeutic products for US patients living with cystic fibrosis. Its proprietary Kitabis Pak (co-packaging…
A new study on the association between proteases and anti-proteases during Cystic fibrosis entitled “Changes of Proteases, Antiproteases, and Pathogens in Cystic Fibrosis Patients’ Upper and Lower Airways after IV-Antibiotic Therapy” was published this June in Mediators of Inflammation. Cystic fibrosis (CF) is the…
In a new study entitled “Natural Variation in Gene Expression Modulates the Severity of Mutant Phenotypes,” researchers show that disease severity in genetic disorders such as Cystic Fibrosis depends on the genetic background of individuals and not solely on the genetic defect of a particular gene. These…
Children’s Healthcare of Atlanta, Emory University, and Georgia Tech were recently awarded a grant by The Cystic Fibrosis Foundation to expand the Atlanta CF Research and Development Program (CF@LANTA RDP Program). The four-year grant worth $1.8 million will enable the collaborating institutions to expand their current cystic fibrosis research projects and translate…
A new study recently published in the journal Nature Biotechnology reported the creation of miniature bile ducts in the lab and their use in the discovery of a new promising therapeutic drug for cystic fibrosis (CF). The study is entitled “Cholangiocytes derived from human induced pluripotent…
The Cystic Fibrosis Foundation, the world’s most prominent organization dedicated to the search for a cure for cystic fibrosis, has just announced its President and Chief Executive Officer, Robert J. Beall, Ph.D., will be stepping down from his position of 21 years. The current Executive Vice President for medical affairs, Dr. Preston…
Thiocyanate is a molecule found throughout the human body. Recent studies in animals have shown that thiocynate could be used as a treatment for lung inflammation, although more research is needed. These new insights are particularly important for the CF community, as thiocynate could potentially be useful as a treatment for…
Last week, the Her Royal Highness the Countess of Wessex, Sophie Rhys-Jones, officially inaugurated the Wolfson Cystic Fibrosis Center at Nottingham City Hospital. During the opening day, HRH made time to meet with CF patients, as well as the center’s staff and key donors. The new 250-bed center is estimated to be…
Gene therapy in the context of treating cystic fibrosis made a significant step forward with the announcement of positive data from a Phase IIb clinical trial investigating the VGXI-manufactured aerosolized DNA plasmid expressing Cystic Fibrosis Transmembrane Conductance Receptor (CFTR) — an experimental CF therapy that improved a key lung function…
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