UK-based non-profit organization, Cystic Fibrosis Trust, recently launched a new awareness campaign that seeks to empower individuals living with cystic fibrosis (CF) to find out which specific CFTR gene mutation they are carrying. When patients know their specific mutation, physicians can prescribe more targeted, effective treatments, and even help patients participate in appropriate clinical…
An article published this week in the new edition of Annals of the American Thoracic Society, provides an essential overview of health indicators that are important to patients diagnosed with cystic fibrosis (CF). Study investigators from University of British Columbia, School of Population and Public…
A new report on cystic fibrosis (CF) in England and Wales further supports evidence of the groundbreaking impact that Kalydeco (ivacaftor) has had on treating CF, and reinforces the Cystic Fibrosis Trust‘s urgency for the drug to be made available to the 44 patients with rare CF gene mutations in…
During the annual meeting of the American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR), medical device company Harmonica Techs asked health professionals dealing with cystic fibrosis and other pulmonary conditions if they observed that spirometry improves patients’ lung function through any of the standard interventions. In order to assess…
Cystic Fibrosis News Today is pleased to announce that Stephen Shannon, a student researcher currently earning his Ph.D. and a person with Cystic Fibrosis, will join the website’s editorial staff and publish a weekly column on his personal journey in living with the disease, as well as fresh insights…
The Cystic Fibrosis Foundation, a nonprofit donor-supported organization and world leader in the search for a cystic fibrosis cure, recently issued guidelines on the diagnosis and treatment of the disease. These guidelines were conceived by a committee of experts based on the available literature and clinical evidence reported.
In his first weekly column for Cystic Fibrosis News Today, PhD student and CF patient Stephen Shannon talks candidly about what the ongoing search for a cure for Cystic Fibrosis means to him, and why there is great reason for Hope. I was two years old when I was diagnosed…
President Barack Obama, during his recent State of the Union Address, highlighted cystic fibrosis (CF) as the nation’s model for the White House’s upcoming strengthened strategy for “precision medicine,” or groundbreaking treatments that specifically target “chinks” in a disease’s “armor” — commonly found all the way down to a…
The Food and Drug Administration has approved the use of the eRapid Nebulizer (eRapid) from Pari Respiratory Equipment Inc. to administer Genentech’s product Pulmozyme for use by patients with Cystic Fibrosis. Lisa Cambridge, the director of Medical Science and Pharmaceutical Alliances at Pari, described eRapid as, “a true…
Galapagos NV, a Belgium-based, clinical stage biotech company focused on developing novel mode of action medicines, recently announced it has received a €2.5 million grant from the Flemish Agency for Innovation through Science and Technology (IWT), which is meant to fund the company’s further research and development of new antibiotics. Working…
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