The Mauli Ola Foundation (MOF) will launch its 2015 tour to honor Cystic Fibrosis Awareness Month in May with the first Surf Experience Day (SED) in Waikiki, Hawaii having just kicked off this last weekend on May 2, 2015. Sunny Garcia, the MOF Ambassador, has partnered with Hyatt Regency Waikiki…
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Bianca Nicholas made history when she and Alex Larke, together known as Electro Velvet, represented the United Kingdom at the Eurovision Song Contest 2015 with the song “Still in Love with You.” Bianca suffers from cystic fibrosis, and the Cystic Fibrosis Trust is raising awareness through her participation in the…
Researchers have discovered an association between Cystic Fibrosis and infection with the parasite Toxoplasma gondii. The study entitled “Infection by Toxoplasma gondii, a severe parasite in neonates and AIDS patients, causes impaired anion secretion in airway epithelia” was published in the Proceedings of the National…
Cystic Fibrosis Foundation Therapeutics, Inc. (CFFT) has granted a $5 million development award to clinical stage drug developer Corbus Pharmaceuticals Holdings to support the development process of its investigational drug Resunab to treat cystic fibrosis (CF). The funding from the CFFT, which is the non-profit drug discovery and development affiliate of…
Researchers at Yale University and Yale School of Medicine in Connecticut recently published in the journal Nature Communications that they were able to successfully correct the most common mutation in the gene responsible for cystic fibrosis (CF). The study is entitled “Nanoparticles that…
Discovering new compounds to treat cystic fibrosis is now more feasible as a result of work in the collaborative laboratory of Dr. Aleksander Edelman at INSERM in France. The research team identified new compounds using their novel functional assay that tests the function of the CFTR protein following the application…
In diseases like cystic fibrosis, the lungs undergo constant healing and remodeling due to chronic infections. To better understand the repair mechanisms the lungs go through in diseases like CF and COPD, scientists have paid great attention to studying cellular regeneration. Scientists at the University of Pennsylvania and Duke University have discovered…
A 39 year-old man with Cystic Fibrosis who was planning to scale Mount Everest in an effort to raise money and awareness for the disease is reportedly safe and making his way back from Everest’s base camp after a massive earthquake over the weekend ravaged the region leaving…
A new clinical study showed that AffloVest®, portable High Frequency Chest Wall Oscillation (HFCWO) vest, improved lung function scores in a cohort of adolescents with Cystic fibrosis. The study, entitled “An evidence-based study of adolescents with cystic fibrosis demonstrated that AffloVest® by International Biophysics contributed to improved…
An article published in the Journal of Clinical Microbiology provides important clues to understanding the cause of pulmonary exacerbations in patients with Cystic Fibrosis (CF). The study, entitled, “Analysis of changes in diversity and abundance of the microbial community in a cystic fibrosis patient over…
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