News

A proverbial elephant crowding the drug-accessibility room is getting harder and harder to ignore. The high cost of some new pharmaceutical medicines designed to treat devastating and often deadly, but relatively rare disease conditions, combined with concerns over the sustainability of government-led public health systems and current…

A team of researchers from the University of Pittsburgh has discovered that people with unexplained pancreatic problems might have a previously unknown type of cystic fibrosis that doesn’t affect the lungs. According to the Cystic Fibrosis Foundation, there are over 30,000 children and adults in the United…

Two new abstracts from the Journal of Cystic Fibrosis recently focused on the bacteria Pseudomonas aeruginosa (Pa) and sought to enhance knowledge of treating and diagnosing cystic fibrosis. Pa is highly relevant to cystic fibrosis, as it is the most common bacteria in the lungs of patients and leads…

23 year-old Beau Rich is not the first person to plan an inspired cross-country trek across the United States, visiting some of the most picturesque nature spots along the way. He’s also not the first person to plan on filming his travels and putting together a movie about his…

Robert J. Beall, President and CEO of the Cystic Fibrosis Foundation, was invited to a hearing on the theme “21st Century Cures: Incorporating the Patient Perspective,” at the House of Representatives’ Energy and Commerce Committee. The CF Foundation was one of the four patient advocacy institutions selected to testify.

A team of research scientists at the University of Freiburg (Albert-Ludwigs-Universität Freiburg) at Freiburg im Breisgau, Baden-Württemberg, Germany, the University of Geneva, and the University of Grenoble report that they have succeeded in preventing the hospital-acquired bacteria Pseudomonas aeruginosa, a pathogen particularly dangerous to persons with Cystic Fibrosis (CF), from…

The nonprofit organization Claire’s Place Foundation, founded by a 17-year-old cystic fibrosis patient (CF), was recently awarded “Small Nonprofit Organization of the Year” by the Los Angeles Business Journal. The recognition was attributed to the positive the impact that the organization named after Claire Wineland has had on children and…

The first Princeton, IL cystic fibrosis (CF) walk raised over $13,000 recently, $3,000 more than expected. The Great Strides Cystic Fibrosis Walk, held on June 28th, was organized by 28-year-old student Cheriz Kunkel, who was diagnosed with CF when she was a baby. Kunkel announced that the walk was a major…

Baby Bridget, born on June 27th, became the first baby conceived in Ireland using pre-implantation genetic diagnosis (PGD), a technique used to screen embryos for genetic mutations such as cystic fibrosis (CF). Despite the fact that both parents have genetics that, when combined, can lead to CF in their children, baby…

In the wake of recent promising clinical results, Vertex Therapeutics announced the submission of a supplemental New Drug Application to the U.S. Food and Drug Administration for the approval of the drug Kalydeco (ivacaftor) for patients with cystic fibrosis who are more than 18  years old and…