Claire Wineland The inspiring story of a child’s tenacious battle with cystic fibrosis (CF) was the force behind the founding of a non-profit organization with a mission to give much-needed emotional and financial support to children diagnosed with CF and their loved ones. Claire Wineland, now 17 years…
Cystic fibrosis is among the numerous chronic conditions categorized as rare diseases. As many cystic fibrosis patients know, a unique set of burdens are placed upon themselves and their caregivers, and Atlantis Healthcare is working to bring light to patients’ hardships. Recently, Atlantis Healthcare released a white paper with…
Creative Electric (CE), a performance company in Scotland, is launching a fundraising effort to support a new project, a theatrical performance entitled, “HEY, I’M ALIVE!” that gives voice to a character who suffers from Cystic Fibrosis, according to a recent post on the North Edinburgh News (NEN) website.
For Irish couples, trying for a baby can be a source of anxiety because of their ethnic predisposition to a hereditary, debilitating disease of the mucous glands known as cystic fibrosis (CF). Statistics show that 1 out of every 19 Irish adults carries the gene for this condition, and…
Combining sporting events, socialization, and awareness campaigns has always been a great way to involve more people in supporting a cause. Whether it’s running a marathon, completing a workout, or doing cross-country biking, injecting an element of fun into supporting a serious disease has become…
One of the major concerns of cystic fibrosis (CF) patients worldwide is their dangerous predisposition to lung infections. Because of difficult to manage mucous build-up in their airways, incidences of viral and bacterial respiratory infections can become life-threatening — especially if it is an overgrowth of…
Vertex Pharmaceuticals will be presenting 15 abstracts at the 28th Annual North American Cystic Fibrosis Conference (NACFC) held in Atlanta from October 9-11. Each abstract is from Vertex’s cystic fibrosis research and development program. Data will primarily be related to TRAFFIC and TRANSPORT clinical trials, which were phase…
In the wake of Robin Williams’ recent untimely death, the comedy world took another hit last Thursday, September 4th, when Melissa Rivers announced that she had made the unfortunate decision to take her comatose mother and international comic icon, Joan Rivers, off life support. After more than 5 years of…
New research out of Germany has made an important discovery that is shedding light on what causes Cystic Fibrosis patients to experience an impaired immune response with the disease. The research, recently published in the Journal of Molecular Medicine, entitled, “Decreased Expression of HLA-DQ and -DR…
One of the most anticipated and largest international summits of pulmonology, the European Respiratory Society’s (ERS) International Congress, is scheduled to take place on September 6-10, 2014. During this event, Insmed Incorporated will present data on their latest advancements in inhalation modalities for respiratory diseases. This year’s…
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