News

Canada’s CTV News reported late last week that the province of Alberta’s health minister has successfully negotiated a tentative deal that will allow Canadian provinces to cover the cost to their provincial pharmacare plans of the multiple sclerosis (MS) drug Kalydeco, used for treatment of cystic fibrosis (CF)…

A recent study led by GBI Research entitled “Cystic Fibrosis Therapeutics in Major Developed Markets 2019 – CFTR Modulators Initiate Drive Towards Personalized Treatment and Market Growth,” notes that the Cystic Fibrosis market will grow from $695.6 million in 2012 to near a $ 4.5 billion in 2019 in…

Austin-based International Biophysics Corporation’s marquee product, AffloVest, is a cutting-edge technology airway clearance vest that represents a major advance in treatment of respiratory diseases such as Cystic Fibrosis (CF), Chronic Obstructive Pulmonary Disease (COPD), chronic bronchitis, and similar related ailments. This High Frequency Chest Wall Oscillation (HFCWO) vest that gives…

According to an exclusive report from Fox Sports 1, a scout for the Miami Dolphins is considering a lawsuit for allegedly being fired as a result of telecommuting to work in order to care for his wife who has Cystic Fibrosis, after recently losing healthcare coverage for her…

Bacterial infections pose a major health risk in cystic fibrosis patents, which can lead to hospitalization and life-threatening health issues. As a result, the research community continues to focus on new therapies that effectively treat CF patients for common bacterial infections in the lungs while also facilitating patient compliance.

The Walgreens Alliance Pharmacy has announced that it is now offering a new program that provides medication instruction, support, and continuing guidance to patients with cystic fibrosis (CF). The personalized Connected Care Cystic Fibrosis Management Program aims to help people live longer and healthier lives, and will be accessible…

A new study by researchers at the University of California, San Diego School of Medicine finds that technology helps adolescents with chronic diseases (ACD) in developing the independent, self-management skills they need as they assume the responsibilities and privileges of adulthood. Teens with chronic diseases such as cystic fibrosis,…

Montreal-based biotech startup Laurent Pharmaceuticals Inc. announced Wednesday that the Research Institute of the McGill University Health Centre (RI-MUHC) in Montreal has begun enrolling patients in an investigator-initiated clinical trial evaluating the safety, tolerability and pharmacokinetics of a novel oral formulation of Fenretinide in adult subjects with Cystic…

A new study led by a team in the Research Institute at Columbus, Ohio based Nationwide Children’s Hospital and published in the journal PLoS One this month, suggests that boosting a key immune process called autophagy a natural process in which proteins and other cell materials are degraded…

Increasingly in the cystic fibrosis community, fundraising walking and running events have become a popular, effective means of raising awareness about the disease and supporting ongoing research efforts to bolster drug development for next-generation CF treatments. No other group has utilized this sort of fundraising event better than the…