“I’m fear-driven. I want to do everything I can for my granddaughter to extend her life, and the lives of those who are struck with this disease.” – David Kuhn The medical community now has a more positive outlook towards cystic fibrosis (CF) management compared to how…
News
Biopharmaceutical company AbbVie has begun the voting process for the award of 40 scholarships to outstanding students with cystic fibrosis (CF). The award will grant each winner $2,500 to be invested in their undergraduate or graduate school education during the next school…
Thanks to advances in pulmonary and nutritional therapies for cystic fibrosis, children who were born and diagnosed with this disease in the United States in 2010 are expected to live longer than those born earlier, a study recently published in the journal Annals of Internal Medicine…
Aussie Scientists’ New X-ray Imaging System Helps Monitor Cystic Fibrosis Treatment Effectiveness
Scientists at Melbourne, Australia based Monash University have developed a new x-ray imaging system that enables researchers to see ‘live’ how effective treatments are for cystic fibrosis. Published in the American Journal of Respiratory and Critical Care Medicine, entitled,…
People suffering from Cystic Fibrosis (CF) usually develop lung disease due to a defective host defense that allows bacterial infections in the airways. Furthermore, advanced CF patients cannot preform mucociliary transport (MCT), a process that traps and drives bacteria from the lungs through mucus flows in the epithelium…
Cystic Fibrosis (CF) is the most frequent, lethal genetic disorder, affecting roughly 30,000 people in the United States. Early death occurs mainly from chronic lung disease caused by persistent lower airway infection and inflammation. There are several important airway pathogens that are detrimental to CF patients, such as Staphylococcus…
The Food and Drug Administration (FDA) has given a Humanitarian Use Device approval to a novel device, the XPS™ and STEEN Solution™ XVIVO Perfusion System, which has the capacity to preserve donated lungs outside the human body for up to 4 hours before surgery into critically ill patients, including those…
Cystic Fibrosis Patients At Risk From Bacterial Strains Resistant To Antibodies, According To Study
Cystic Fibrosis is a serious genetic disease, with 1,000 new cases registered each year and more than 30,000 people affected in the US alone. Because the disease gradually debilitates lung function, it increases the probabilities of developing a lung infection, causing a major impact on a patient’s quality of…
Study, Diagnosis of Cystic Fibrosis, Other Rare Western Diseases on the Rise in Eastern Countries
While some prevalent diseases, such as cancer and heart disease, appear to be equally distributed throughout the world, other diseases tend to be more regional, based on both genetic predispositions and environment. In the case of diseases spurred on by environmental factors, such as Neglected Tropical Diseases, which…
Patients with cystic fibrosis are all too familiar with the fact that a single mutation — in particular, a mutation in the gene coding for the CFTR protein — can wreak havoc on an individual’s health. Those afflicted with cystic fibrosis commonly face a number of problems in their…
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