News

According to an exclusive report from Fox Sports 1, a scout for the Miami Dolphins is considering a lawsuit for allegedly being fired as a result of telecommuting to work in order to care for his wife who has Cystic Fibrosis, after recently losing healthcare coverage for her…

Bacterial infections pose a major health risk in cystic fibrosis patents, which can lead to hospitalization and life-threatening health issues. As a result, the research community continues to focus on new therapies that effectively treat CF patients for common bacterial infections in the lungs while also facilitating patient compliance.

The Walgreens Alliance Pharmacy has announced that it is now offering a new program that provides medication instruction, support, and continuing guidance to patients with cystic fibrosis (CF). The personalized Connected Care Cystic Fibrosis Management Program aims to help people live longer and healthier lives, and will be accessible…

A new study by researchers at the University of California, San Diego School of Medicine finds that technology helps adolescents with chronic diseases (ACD) in developing the independent, self-management skills they need as they assume the responsibilities and privileges of adulthood. Teens with chronic diseases such as cystic fibrosis,…

Montreal-based biotech startup Laurent Pharmaceuticals Inc. announced Wednesday that the Research Institute of the McGill University Health Centre (RI-MUHC) in Montreal has begun enrolling patients in an investigator-initiated clinical trial evaluating the safety, tolerability and pharmacokinetics of a novel oral formulation of Fenretinide in adult subjects with Cystic…

A new study led by a team in the Research Institute at Columbus, Ohio based Nationwide Children’s Hospital and published in the journal PLoS One this month, suggests that boosting a key immune process called autophagy a natural process in which proteins and other cell materials are degraded…

Increasingly in the cystic fibrosis community, fundraising walking and running events have become a popular, effective means of raising awareness about the disease and supporting ongoing research efforts to bolster drug development for next-generation CF treatments. No other group has utilized this sort of fundraising event better than the…

A group of academic professionals at Scotland’s Stirling University have taken it upon themselves to call on the family members of children diagnosed and living with cystic fibrosis (CF) to take part in the production of a new film that hopes to raise awareness on the stresses of physiotherapy…

PTC Therapeutics, Inc. announced unexpected, yet encouraging results of their product ataluren. The biopharmaceutical company focuses on developing small-molecule drugs that target post-transcriptional control processes to alter protein production. Ataluren is PTC’s investigational new drug designed to restore protein function in cystic fibrosis patients with a nonsense mutation (nmCF)…

Complimentary therapeutic approaches are nothing if not controversial in conventional medicine and mainstream organizations offering information and support for those afflicted with particular diseases. This leaning toward cautious conservatism is commendable, as there is usually plenty of unsubstantiated advice around — often associated with the sale of scientifically unproven…