In this BBC report, a mom from Dudley, England says she fell under harsh criticism from online trolls after she posted a video of her 15-month-old daughter Daisy undergoing the vital physiotherapy needed to help clear mucus out of her chest due to cystic fibrosis. Cystic Fibrosis Foundation pens open letter…
https://www.instagram.com/p/BQO0Os6BvNl/?taken-by=cfnewstoday Instagram has become a great platform for sharing inspirational stories of personal courage and bravery. Travis Flores is a perfect example of this. The 26-year-old shares stories about his journey with cystic fibrosis and just last week, penned an open letter to the surgeon who performed his double…
Manny the Frenchie is a YouTube star. The talking French bull terrier has his own Facebook page and is followed by thousands of people—one of this people is New Orleans resident Joycelun, who is a huge fan of the adorable animal. Find out nine ways that cystic fibrosis affects…
In this Hannah Breathes YouTube video, Hannah talks about her time at college and explains how her cystic fibrosis worsened when she left home and that she ended up in the hospital several times during her first year. Find out about Breath Easy, a new community for people with cystic…
According to the West Plains Daily Quill, the country music band Lonestar has announced they’ll be playing a cystic fibrosis benefit concert at the West Plains Civic Center in Missouri. Find out how cystic fibrosis affects the lungs. Lonestar has been making music and touring for 22 years and was…
As the new president’s administration is still in the act of revising health care policies, the Cystic Fibrosis Foundation along with 72 other non-profit organizations wrote an open letter to President Trump and Congress to explain their concerns about any amends to the health care system and what it may mean for…
Invisible illnesses are conditions patients have that are not obvious when looking at them. Often people with an invisible illness face a lot of prejudice; others accuse them of faking, lying or exaggerating their illness. People just don’t fully understand what patients with invisible illnesses are going through.
This documentary from UCO Media introduces three young cystic fibrosis patients, who share some of their biggest fears about having the disease. The award-winning Three Lives is directed by Olivia Prinz. Learn more about Eva Markvoort’s documentary 65_Red Roses. Thirty-six-year-old Kori Tolbert talks about her fears as she comes…
Cystic fibrosis (CF) is a genetic condition found in approximately 1 in 2,500 babies. The main areas of the body affected are the stomach, pancreas, liver, and lungs. But how do the lungs work and how does cystic fibrosis affect them? Read about the three treatment categories for cystic fibrosis…
Staying Salty is a YouTube channel launched last year where seven vloggers with cystic fibrosis all talk about a different subject each week. Some of the subjects covered so far include how they were diagnosed, medication compliance, growing up with CF, and dating with CF. Team members come from different walks of…
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