According to Yahoo News, Nardya Miller, the Brisbane-based makeup artist who made the brave decision to announce on Facebook that she was losing her battle with CF, passed away yesterday surrounded by her family and fiancé. She was 25 years old. Discover four common misconceptions about cystic fibrosis. She…
The multi-award-winning documentary 65_RedRoses follows the story of 23-year-old Eva Markvoort from British Columbia, Canada. Eva had cystic fibrosis and her lung function was so low that she needed a double lung transplant. Learn more about cystic fibrosis and lung transplants here. The trailer gives the audience a peek…
Back in 2014, 15-year-old Bryan Warnecke was the inspiration for a OneRepublic music video. The video for the song “I Lived” features Bryan going about his everyday business–having cystic fibrosis treatments, cycling, and playing ice hockey. Find out about another music video which aims to raise awareness…
Many cystic fibrosis patients have a pancreas deficiency which means that they are unable to produce enough digestive enzymes to extract nutrients from food. This often leads to CFers being underweight and lacking vital minerals and vitamins. Discover five webcasts about diet and nutrition for cystic fibrosis patients. In…
Chances are you know someone who has an invisible illness. An invisible illness means that a person is suffering from an illness or disease which isn’t necessarily visible on the outside. However, just because you can’t see what’s wrong doesn’t mean that there isn’t anything wrong. People with invisible illnesses…
Professor Daniel Chambers from the Queensland Lung Transplant Service at The Prince Charles Hospital in Brisbane, Australia debunks myths about lung transplants for cystic fibrosis patients and other patients with lung problems. Read about five of the myths here: Myth 1: Lung transplantation is an experimental treatment. Lung transplant was considered “revolutionary” when it…
Anyone with a chronic illness will testify that they spend a lot of time in the doctor’s office having blood work done. Which means getting pricked with a lot of needles, which can sometimes take two or three (or more) attempts to find a compliant vein. Here are six…
Breathe Easy describes itself as a way of “reinventing the way people look at illness” and considers itself a lifestyle movement. It focuses on raising awareness of cystic fibrosis through its Instagram account, which combines pictures of road cyclists with important facts about CF, and its YouTube…
According to the Cystic Fibrosis Foundation, because the severity and symptoms of CF can vary from person to person, treatment therapies are individualized to suit each patient’s needs. Every day, CF patients complete a combination of the following therapies: 1. Airway clearance This is necessary in order to help…
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