“There was a girl I was very interested in,” says Gunnar Esiason. “We were hanging out and, it’s a long story, but my feeding tube exploded on her.” “I was dating this guy, and he saw my port-a-cath and goes, ‘Oh my God, are you ok?…
Social Clips
This documentary from UCO Media introduces three young cystic fibrosis patients, who share some of their biggest fears about having the disease. The award-winning Three Lives is directed by Olivia Prinz. MORE: Learn more about Eva Markvoort’s documentary 65_Red Roses Thirty-six-year-old Kori Tolbert talks about her fears as she comes…
Staying Salty is a YouTube channel launched last year where various vloggers with cystic fibrosis all talk about a different subject each week. Some of the subjects covered so far include how they were diagnosed, medication compliance, growing up with CF, and dating with CF. Team members come from different walks of…
In this Hannah Breathes YouTube video, Cystic Fibrosis News Today columnist Hannah Buck talks about her time at college and explains how her cystic fibrosis worsened when she left home. It got so bad that she ended up in the hospital several times during her first year. MORE: Find…
James and Charles Dunlop had already done plenty for the cystic fibrosis community as the founders of Ambry Genetics. Their diagnostics company was the first to do a full CF gene analysis that looked at the entire CFTR gene in 2001, which includes about 1,300 known mutations. The brothers…
The Cystic Fibrosis Foundation has launched a series of videos aimed at helping cystic fibrosis patients get fit. The videos are aimed at different age groups and look at age-appropriate ways for patients to exercise and build their strength. MORE: 14-year-old Brayden Merrill is inspiring fellow cystic fibrosis patients to exercise…
In this roundtable podcast from the Cystic Fibrosis Trust, host Oli Lewington talks to author Tim Wotton, music therapist Jo Acharya and Emma Lake from the Cystic Fibrosis Trust about their involvement in Alice Peterson’s fictional novel “A Song for Tomorrow.” MORE: …
https://www.facebook.com/CharlesMichaelDuke/photos/pb.693648407393934.-2207520000.1508334003./1492347040857396/?type=3&theater Charles Michael Duke is a singer, actor and TV host from Bournemouth in the U.K. He’s also a YouTube star who is using his fame to raise awareness of cystic fibrosis (CF) and organ donation. MORE: The danger of cross infections for those…
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…
It’s interesting to see characters with cystic fibrosis in popular media — even if the disease isn’t always portrayed realistically. Check out these films, shows, and books where cystic fibrosis appears, and how the disease is depicted in each one: Foreverland | Film | 2011 In…
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