Valiant Voice – a Column by Lara Govendo

Something specific to the cystic fibrosis (CF) world is how we talk and the words we say. After living with CF my whole life, I’ve gained insight into our speech compared with that of the able-bodied world. That awareness dramatically grew after my double-lung transplant seven years…

It feels surreal that I had a double-lung transplant seven years ago. The season of life leading up to my transplant is still present in my mind as I reflect on what I went through physically and emotionally. Going through the transplant process was traumatic. Today, I continue to…

Living with cystic fibrosis (CF) and having a double-lung transplant six years ago has naturally solicited some internal rumbling regarding my own mortality. When I joined the chronic illness community a decade ago, I didn’t expect that the friends I had made would die so soon.

After my double-lung transplant six years ago, I struggled to exercise. I was breathless and had symptoms of hypoxia, or low oxygen, which didn’t make sense given that I’d just had my cystic fibrosis lungs removed. Tests showed that my new lungs were healthy, so why couldn’t…

Disabilities typically don’t go hand in hand with celebrations. In fact, messages from the able-bodied have told me my whole life that I should hide the part of me that’s significantly affected who I am today: my disability. As we celebrate Disability Pride Month, I’d like to explain how…

During the COVID-19 pandemic, I took up gardening as a hobby. Since I was high-risk for catching the virus because of my cystic fibrosis (CF) and a suppressed immune system from my double-lung transplant, I spent the time isolated. That proved to be the fertile soil to grow…

As we bring attention to National PTSD Awareness Month this June, I want to shed light on my personal journey of recognizing the symptoms in case you’re in a similar boat. After my double-lung transplant in 2017 due to cystic fibrosis (CF), I remember feeling off but…

As we approach the end of Cystic Fibrosis Awareness Month, I want to share some wisdom I wish my younger self would’ve known at the start of my journey with this rare disease. Perhaps you’re in a similar situation and can relate to this advice. Dear younger me:…

Since I was born with cystic fibrosis (CF), gaining weight has always been a challenge for me. CF doesn’t only affect the lungs; it can also cause a number of gastrointestinal (GI) issues. Because my body lacks the salt content to move fluids effectively through my system, my GI…

I am a strong advocate for organ donation because I was on the receiving end of a double-lung transplant in 2017. Not only did it save my life, but it also radically transformed my health in many ways. Since then, I believe it’s imperative to clear up some…