Adjusting my summer diet to better meet my CF needs

Because I’m living with cystic fibrosis (CF), nutrition is more than just a personal choice; it’s a vital part of managing my health.

With CF, malabsorption of fats and fat-soluble vitamins makes it challenging to gain and maintain weight. It also results in vitamin deficiencies. And while the old-school mindset was focused on packing in calories through greasy burgers, milkshakes, and sugar-heavy treats, that’s changed as many of us are living longer than onetime expectations. That means it’s time to think about what we eat in a more nutritious way, especially during the summer months.

The challenge is real. With CF, we lose more salt and fluids than the average person. Add to that the complications of CF-related diabetes (CFRD), and summer snacking becomes a strategic balancing act. We need calorie-dense foods to maintain weight, hydration to prevent electrolyte imbalances, and steady blood sugars to protect our long-term health. Oh, and we want it all to taste good, too.

My eating style, beyond regular mealtimes, is to graze all day. Instead of defaulting to fries and milkshakes, I aim for snacks that are nutrient-rich but still support hydration and stable blood sugars.

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My go-to foods

A few examples are crisp, cooling cucumber slices with cream cheese; they’re refreshing and hydrating with a bit of fat to help keep me full. Apples and peanut butter are another go-to for me. They pack fiber, natural sweetness, protein, and fat all in one satisfying bite.

Avocado toast is a classic for a reason, and something I eat any time of the day or night. It contains healthy fats and fiber, and I can add toppings like chia seeds or a boiled egg for extra protein. Many times, I top it with bruschetta and garlic salt for a savory snack.

If I have more energy, I’ll throw together a salmon BLT on whole grain toast for omega-3 fatty acids, protein, and the hint of salt that my body craves in the summer heat. For a quick meal or hearty snack, salad bowls with leafy greens, roasted chickpeas, seeds, nuts, fruit, and a protein like grilled chicken or tofu are perfect, and I might add a light vinaigrette or olive oil dressing. They’re hydrating and customizable, and the variety keeps things interesting.

Watermelon salad, which also includes cucumbers, feta cheese, and mint, is a favorite side for summer night dinners when I grill a protein. Salty pretzels are a snack I’ve grown up with and continue for the extra salt. Now I dip them in hummus. Does everyone know there’s chocolate hummus? I’m in love.

These smarter choices do more than fill me up. They help protect the heart, stabilize blood sugar, and support energy levels, which is key when dealing with the day-to-day fatigue from CF.

With my CFRD, I’ve learned that not all carbs are created equal. Pairing complex carbs with protein and fat keeps my glucose levels more stable, helping me feel better longer. Overnight oats with fruit, nuts, and a drizzle of honey have become a staple breakfast choice for me.

How to eat well amid challenges

But let’s be honest, eating this way isn’t always easy. The cost of healthy food is rising, and for many in the CF community, finances are already stretched thin by high medication costs, insurance deductibles, and the reality that working full time might not be medically possible. Quality food access is not just a CF nutrition issue; it’s a systemic issue here in the U.S., and one that’s hard to believe happens in our nation.

One tip to help combat the financial strain is to look into local food banks and other community programs. Many people don’t realize they qualify for assistance, especially if they’re dealing with medical expenses or part-time work. Some food pantries even offer fresh produce and pantry staples that can help build a more balanced plate.

Eating well with CF is not just about getting enough calories; it’s about getting the right ones, staying hydrated, and making choices that support our whole body. With a bit of creativity and resourcefulness, we can snack smarter and feel stronger, even in the heat of summer.

I’m always looking for new snack and meal ideas. I’d love to hear your favorite go-to foods for summer in the comments below.

Note: Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Cystic Fibrosis News Today or its parent company, Bionews, and are intended to spark discussion about issues pertaining to cystic fibrosis.