• Regimens, Medicines, and Physiotherapy

  Typical CF Treatments for people in the US

  Posted by Luisa Palazola on January 10, 2019 at 4:35 pm

  Hey guys, so this isn’t a consolidated list, but I think it’s helpful to list all the basic treatments, medicines, and therapies we use. I know other countries have different approaches and protocol. But, maybe this list will be helpful.

  Breathing treatments:
  – xopenex or albuteral as bronchodilators
  – pulmozyme (most patients are prescribed if they can tolerate it, it acts to thin mucus secretions)
  – hypertonic saline
  – inhaled antibiotic depending on what bacteria is cultured (the most common are: Tobi, Cayston, and Colymycin)

  Airway clearance:
  – the Vest (I think the US is the only country that has this as a standard CPT method)
  – the flutter & acapella
  – manual chest physical therapy using hands/clapping on chest and back
  – PEP
  – exercise

  Medicines:
  – Enzymes (depending on what brand works for the person, we have Zenpep, Creon, Pertzye, etc)
  – AQUADEKS (vitamin supplements)

  Often times, we are admitted and treated with IV antibiotics for a minimum of two weeks. The antibiotic chosen depends on bacterial sensitivity. There’s quite a range of IV antibiotics, but I’ll list big names often used here. However, it’s incredibly important to remember that these medicines are chosen based on bacterial sensitivity.

  – Ceftaz
  – Tobramycin
  – meropenem
  – Vancomycin

  To administer IV’s, most people have either a semi permanent catheter called a PICC line or they have a surgically placed apparatus called a Port a Cath.

  I am not too well versed in GI medications and surgeries. However I know when people have difficulty gaining weight, there are various food supplementations given like scandi shakes, or a g-tube or mickey button is placed, to deliver formula.

  Luisa Palazola replied 5 years, 11 months ago 1 Member · 0 Replies
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