-
How my treatment routine has changed since Trikafta
I recently got sick and had a bit of a change in mucus production. Because I am on Trikafta, I don’t feel congested often – so feeling congested felt a bit disorienting.
I hooked myself up to the Vest, which gave me a bit of pause to reflect on then and now.
Then: I started Trikafta during the trials in 2018. At the time, I couldn’t afford much flexibility in my treatment routine. I was doing the Vest 2-3 times a day, 2 vials of Hypersa 2-3 times a day, and an inhaled antibiotic. And, an admission twice a year.
Now: Most days my treatment routine feels unnecessary unless I am sick. I take my daily and nightly pills and that’s it. I do get days where I have more mucus production, but for the first time ever, I struggle to make myself do treatments.
It’s still a bit wild that my body has changed so much!
What’s been your experience if you’re on Trikafta?
Log in to reply.