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How do you know it’s time for a tune up on Trikafta?
I’ve been on Trikafta for three years now and I am nearing four years IV free. Since being on Trikafta, I’ve had various courses of oral antibiotics but haven’t had a full-blown exacerbation. I am currently going on week two of moderate chest congestion + orals. I am feeling better, but not “normal.” It’s strange, because pre-Trikafta, I would know when it was time for IV’s. Nowadays, it’s a bit confusing because I certainly don’t feel like I did before Trikafta, but I also don’t feel like my Trikafta baseline.
So, my question for you is:
- Have you been on IV’s since Trikafta?
- If so, how did you decide it was time to go on IVs?
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