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    • #16958
      Jenny Livingston
      Keymaster

      Day 27 of 31 Days of CF
      Topic: Perspective From a Fellow Rare Disease Patient

      “Despite similar treatments, meds, and protocols, the CF community collectively shares a narrative, a story that is not mine. As a friend and rare disease patient, I hope to do what I can to lift up my CF friends and amplify their stories. I hope to share their highs, lows, and everything in between.” — Bonnie Ong

      Read the full story from  @genetically.clumsy on Instagram here or at CFNewsToday.com here.

      The solidarity across rare disease communities online has been something I cherish. Are you involved with or have friends in other rare disease communities?

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