• This topic is empty.
Viewing 0 reply threads
  • Author
    • #16958
      Jenny Livingston

      Day 27 of 31 Days of CF
      Topic: Perspective From a Fellow Rare Disease Patient

      “Despite similar treatments, meds, and protocols, the CF community collectively shares a narrative, a story that is not mine. As a friend and rare disease patient, I hope to do what I can to lift up my CF friends and amplify their stories. I hope to share their highs, lows, and everything in between.” — Bonnie Ong

      Read the full story from  @genetically.clumsy on Instagram here or at CFNewsToday.com here.

      The solidarity across rare disease communities online has been something I cherish. Are you involved with or have friends in other rare disease communities?

Viewing 0 reply threads
  • You must be logged in to reply to this topic.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen


We're not around right now. But you can send us an email and we'll get back to you, asap.


Log in with your credentials


Forgot your details?

Create Account

Verify you are not a robot