I participated in a clinical trial. It was cumbersome, long, and uncomfortable (I won’t go into it too much right now). I was sure to provide feedback, but even though I knew I was doing something positive for the CF community, it was still a lot to handle. That got me to thinking about how people with CF are expected to think about the greater good of the community, even if it disrupts our lives personally. It’s an interesting dichotomy.
- Have you participated in clinical trials? How many?
- What type of experiences have you had? Write about your positive and negative experiences.
- What are some things you would like research coordinators and doctors to know about your experiences and how to improve the overall experience in the future?
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