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Day 23 of #31DaysOfCF: Thanks to Trikafta, the Blinders in My Life Have Come Off
Maggie Ronayne is 26 years old and is from Southeast Michigan.
Maggie believes that having an invisible illness like cystic fibrosis is a bit of a crazy thing, because one day she’s having a great time with friends, and the next she could be in the ICU fighting for her life.
Trikafta (elexacaftor, tezacaftor, and ivacaftor) was truly a game changer for Maggie. She was able to graduate college, move out of her parents’ house, and start a full-time job.
Maggie also recognizes how Trikafta might not work for everyone, since some patients may have a rare CF mutation. But she will never stop advocating for everyone: “You also deserve to have a CF modulator that works, too.”
Maggie, we need more advocates like you!
Now back to our CF Community: How do you feel about advocating for CF?
To read the rest of Maggie’s story, and learn more about her experience with modulators, click here.
Our #31DaysOfCF initiative is running for the entire month of May. Each day, we are featuring a different story, and a different view of life with CF. To read all of the stories, visit our website.
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1 Reply
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“When you’re given limited options in life due to your chronic illness, you develop tunnel vision. But now, for me, the blinders have come off.” These words struck a chord in me. Trikafta has widened my view of life once again as more things have become possible. It is truly remarkable. As Maggie says, I hope we can keep the spirit of advocacy alive until everyone with CF has a highly effective therapy option available to them.
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