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Maggie Ronayne is 26 years old and is from Southeast Michigan.
Maggie believes that having an invisible illness like cystic fibrosis is a bit of a crazy thing, because one day she’s having a great time with friends, and the next she could be in the ICU fighting for her life.
Trikafta (elexacaftor, tezacaftor, and ivacaftor) was truly a game changer for Maggie. She was able to graduate college, move out of her parents’ house, and start a full-time job.
Maggie also recognizes how Trikafta might not work for everyone, since some patients may have a rare CF mutation. But she will never stop advocating for everyone: “You also deserve to have a CF modulator that works, too.”
Maggie, we need more advocates like you!
Now back to our CF Community: How do you feel about advocating for CF?
To read the rest of Maggie’s story, and learn more about her experience with modulators, click here.
Our #31DaysOfCF initiative is running for the entire month of May. Each day, we are featuring a different story, and a different view of life with CF. To read all of the stories, visit our website.
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“When you’re given limited options in life due to your chronic illness, you develop tunnel vision. But now, for me, the blinders have come off.” These words struck a chord in me. Trikafta has widened my view of life once again as more things have become possible. It is truly remarkable. As Maggie says, I hope we can keep the spirit of advocacy alive until everyone with CF has a highly effective therapy option available to them.
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