• Adults​ ​With​ ​CF

  Death and CF

  Posted by tre-larosa on January 6, 2019 at 9:03 pm

  

  I’ve known for over half of my life that CF was a terminal disease that shortened our life. It’s a harsh reality that all adults with CF had to discover at some point, and while it’s heavy, it’s an important element of our life that we have to acknowledge.

  1. How old were you and how did you find out about people with CF having a shorter life expectancy?
  2. How do you approach this as an adult? Do you approach it by being open? Or other ways?
  3. What do you wish other people understood about the way CF forces us to have this burden?

  tre-larosa replied 5 years, 3 months ago 0 Member · 0 Replies
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