This topic contains 0 replies, has 1 voice, and was last updated by  JeanDArc 3 months ago.

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     JeanDArc 
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    HI All

    I am a Godmother of a 10 months old baby girl with CF living in Slovakia.CF was diagnosed a few weeks after the birth, we have been giving her Dekas Plus vitamins in liquid form, she’s had good results.once she is 2 years old, the doctors will start prescribing Orkambi I think. I recently learnt that there are better CF medicines than Orkambi on the market, e.g. Symdeko. However, Symdeko is not available in Slovakia and Slovakian doctors do not work with it because they are backwards a lot and don’t care much either so I wonder how to get it and how much it costs please. Thanks for any advice.

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