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    • #14197
      Jenny Livingston

      Last night, as I was lying awake in bed, I began thinking back and trying to pinpoint when this started happening. How long have I struggled with insomnia?

      I can remember being a child, quietly playing with my stuffed animals in the early morning hours because I’d woken up and couldn’t fall back to sleep. In high school, I’d watch the minutes and hours tick by on the clock thinking “If I fall asleep now, I’ll get six hours of sleep. Okay, if I fall asleep now, I’ll get five hours of sleep.”

      The conclusion? I’ve always dealt with some degree of insomnia. So much that I’ve never even considered it abnormal, it’s just what I’m used to.

      Researchers have examined the link between CF and sleep disorders. One study found that even stable patients experience sleep disruptions, and sleep disruption may in part be related to the severity of lung disease. Another study suggests that the master circadian clock is affected by CF, and sleep phase delay is a primary manifestation of CFTR dysfunction in the CNS (central nervous system). 

      Do you struggle with insomnia or other sleep issues? Have you found ways to combat insomnia and get better sleep? Or have you found things that affect your sleep negatively? (stress, CF exacerbation, etc.)

      Jankelowitz, L., Reid, K. J., Wolfe, L., Cullina, J., Zee, P. C., & Jain, M. (2005). Cystic fibrosis patients have poor sleep quality despite normal sleep latency and efficiency. Chest, 127(5), 1593-1599.
      Jensen, J. L., Jones, C. R., Kartsonaki, C., Packer, K. A., Adler, F. R., & Liou, T. G. (2017). Sleep Phase Delay in Cystic Fibrosis: A Potential New Manifestation of Cystic Fibrosis Transmembrane Regulator Dysfunction. Chest152(2), 386–393. doi:10.1016/j.chest.2017.03.057
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