• Modulators

    Posted by Tré LaRosa on January 6, 2019 at 8:49 pm

    Right now, there are good modulators available for a large portion of the CF community. In the coming years, it’s reasonable to expect better and more modulators will be available to a larger percentage of the CF community.

    1. If you’re currently on a modulator, what kind of response have you had? Has it been, for lack of a better term, “life-changing?”
    2. Do you feel like being on a modulator has affected your long-term outlook? How so?
    3. If you’re not on a modulator, why not? Is it due to your mutations not being approved, poor response, not accessible, or other?
    4. What’s your hope with upcoming generations of modulators?
    Tré LaRosa replied 5 years, 10 months ago 0 Member · 0 Replies
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