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Advocating for yourself looks like:
I’m really vocal in my care, perhaps it’s my anxiety, but I can’t ever keep my mouth closed. I have questions and I have concerns. And sometimes I get concerned about how vocal I am. But, then all of that changed when the adult CF clinic in my city couldn’t meet my standard of care. It was a terrifying position to be in: having to tell the physician you’re seeing that you need IV antibiotics after a 20% drop in FEV1.
After that, I had to make the decision in transferring to a clinic out of my city. These are all moments of self advocacy and it’s really empowering.
What are your moment’s of self advocacy? Have you let fear keep you from getting what you need?
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