Cystic Fibrosis News Today Forums › Forums › Treating CF › Regimens, Medicines, and Physiotherapy › Orkambi

  • Regimens, Medicines, and Physiotherapy

    Orkambi

    Posted by tre-larosa on March 6, 2019 at 7:23 pm

    After Kalydeco, I remember being extremely excited then subsequently disappointed by the results of Orkambi. It didn’t change things that much for a lot of people, but it definitely had some benefits. I’ve been on it 3.5 years and it certainly thinned out my mucus and reduced exacerbation rates, but didn’t improve my FEV1 or sweat chloride much.

    1. How long have you been on Orkambi?
    2. What types of results have you seen?
    3. Any adverse side effects? If so, were you able to switch to Symdeko?

    tre-larosa replied 5 years, 1 month ago 1 Member · 0 Replies
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