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Personal experiences with a study?
One of the most important aspects of any disabled community, especially the CF community, are the studies conducted to improve the lives of those affected by CF. Studies can range from trying out future modulators to surveys examining mental health.
Have you taken part of a study? What was your experience?
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2 Replies
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I have been a sidelines visitor as a CF caregiver to a nasal swabbing study for potential modulator therapy. It was very interesting, informative, and pretty intense! I look forward to attending more studies as a CF caregiver, and am hopeful that every CF patient in need will be matched with a helpful modulator.
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I’m sure your support for your loved one was greatly appreciated!
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