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    • #13717
      Jenny Livingston

      I’ve begun noticing a pattern where I start feeling sick shortly before my clinic appointments. Sometimes, it’s stomach pain, other times I’ll think I’m at the beginning of an exacerbation. Yet, after clinic, those symptoms completely disappear! My working theory is that my clinic anxiety is manifesting itself through these physiological symptoms.

      Do you get anxiety related to clinic appointments? Do you ever experience something like this?

    • #13762
      Ziv gudes

      it sometimes happen to me too, the one thing that usually happen is the sputum culture. i cant get at the clinic “regular” sputum like from the deep of the lungs and this is effecting the treatment i get.. that maybe i have a bug in the airway that i cant know about it and even my doctor cant. weeks or 2 before and after the “right” sputum is out at the pulmonary drainage by physical therapist or during inhalation (less likely). the second ; i can feel exacerbation few days after my clinic appointment and while i was there ..they definitely didnt exist then…
      the 3rd and most annoying ! – i cant know how my FEV1 will be . even if i feel great.. this test can bite me in the ass.. i can feel that i breath freely and my FEV1 drops 10-12 %.. or vice versa i know for sure that i have exacerbation and i feel less good and obviously the doctor will prescribe me antibiotics for 2-4 weeks.. and boom ! my FEV1 its the same (which is good) or even higher !! i 28 years old and this test never gets easier.

    • #13784
      Ziv gudes

      sorry about my ignorence but what its PFT ?

    • #13785
      Ziv gudes

      oh . so FEV1 and his “friends”

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