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      Jenny Livingston
      Keymaster

      This post shared by Anna McVey-Tyson on the CF Foundation’s Community Blog in 2016 details how she was able to start a Patient Advisory Council at her CF center. She says “if patients and family members want to make a change, the best way to ensure that change can happen is by speaking up and working in harmony with their CF care team. That’s the starting place.”

      The purpose of a Patient and Family Advisory Council is to create an environment where patients, family members, and clinic staff collaborate as partners to improve the patient experience and quality of care. As a member of my center’s foundational advisory board, I can relate to some of the struggles and triumphs Anna writes about.

      Does your center have an advisory board/council? Have you ever served on an advisory board? Do you have any tips for someone looking to start a Patient/Family Advisory Council?

       

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