William Ryan
Forum Replies Created
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Thank you!
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Thank you!
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I have plans to celebrate Christmas with my extended family the weekend after Christmas. I’ll be forced to work around my treatments with the celebration.
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Nothing for this month, but I’m looking to move up my eye doctor appointment to January. I have CF related diabetes and so, my eyes need to be checked on at least once a year.
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I was officially diagnosed at about 3 months old, although, I was treated like I had CF at birth. It was assumed so, but I didn’t do the sweat test until I was about 3 months old. During the first three months I spent in the hospital, I know my parents were very vigilant in my care with doctors and nurses. They rotated as my Mom worked during the daytime and my Dad at nighttime.
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Keep pushing! As I believe I mentioned to someone else, those rare mutations really seemed to fall through the cracks decades ago, because the science wasn’t there. Thankfully, we have it now.
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Keep up the nebulizer treatments! They’ll help out for sure.
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Hopefully you and your husband enjoy the holidays!
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Comfort with a doctor is quite possibly the most important factor when it comes to decisions regarding bodily autonomy.
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It would be great if insurance companies could do more to help out their clients.
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Definitely agree! No one should let CF beat them down.
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Preparing for the next day and reflecting on the day had, while doing the final treatment, helps for sure.
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Healthwell has closed their grants for now. Hopefully, they’ll open up soon.
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It’s unfortunately so true. Life is already more expensive than it needs to be.
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We’re definitely on the same page, Logan. It’s definitely not meant to be a slight or ill intentioned. The same goes to being called a “hero”. It’s meant to be positive. However, when you live with it, it does define you because you do have to do things differently in life opposed to an able bodied person.
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Thank you for sharing your perspective!
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Keep pushing! As I believe I mentioned to someone else, those rare mutations really seemed to fall through the cracks decades ago, because the science wasn’t there. Thankfully, we have it now.
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Thank you for supplying a great source for all of us! It’s really appreciated. Therapy is definitely helpful.
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What is the Alfred if you don’t mind me asking?
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Hopefully funding and legislation can bring upon a brighter future!
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Speaking to loved ones is always a plus. They care deeply for you and only want the best for you.
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Hopefully some real progress can be made within the next few years.
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The present is a present. Never forget!
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I totally agree that it needs to be studied more, but so far, they’ve done a fantastic job.