Registration now open for CF Foundation’s BreatheCon 2025

Annual virtual event to foster patient connections slated for Feb. 7-8

Marisa Wexler, MS avatar

by Marisa Wexler, MS |

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A doctor and patient wave to each other during a telehealth appointment.

Registration is now open for BreatheCon 2025, an annual online event hosted by the Cystic Fibrosis Foundation that aims to foster connections between adults with cystic fibrosis (CF).

This year’s BreatheCon will take place Feb. 7-8. Registration and additional information about the virtual event is available on the BreatheCon website.

“There are some great small-group discussions, panels, and keynotes planned for this year,” Suzie Conway, senior communications specialist at the CF Foundation, wrote in an email to Cystic Fibrosis News Today. “Topics will include wisdom-sharing from older adults with CF, nutrition and weight challenges, managing CF alongside other health conditions, and the different paths to parenthood. There will also be fun events including a virtual game night and karaoke!”

Conway noted that there are also systems in place to make the event as welcoming as possible to first-time attendees, including a buddy system in which newcomers will be paired with someone who’s attended before.

“First-time attendees are again encouraged to join,” Conway wrote.

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Registration open in English and Spanish for this year’s event

BreatheCon 2025 will kick off on the evening of Feb. 7 with opportunities for social networking and connection, followed by an opening keynote address. Then, after a short break, participants can attend one of several sessions covering topics like navigating romantic relationships with CF and managing the disease in day-to-day life. The first day of the event will wrap up with more opportunities for social networking as well as a game night.

The second day of BreatheCon 2025 will offer more opportunities for networking and social connection among the adult participants. There also will be additional informational sessions on topics including different paths to parenthood with CF, the impact of Trikafta treatment on diet, nutrition, and weight management, what life is like after receiving a lung transplant, and living with CF as a person of color.

“Session topics explore the unique experiences, milestones, and journeys with CF,” the event webpage states.

The evening of the second day will conclude with even more chances for social networking, as well as a virtual karaoke session.

CF is caused by mutations in the CFTR gene. The disease is characterized by abnormally thick mucus that builds up in organs, commonly leading to symptoms like lung problems and digestive issues. The CF Foundation hosts BreatheCon each year as a chance for adults with CF to connect with and learn from each other.

There is no cost to attend, and registration is now open in both English and Spanish. Eligible participants must be 18 or older and living with CF. Registrants may choose whether or not to have their names, email addresses, and social media information included in the BreatheCon participant directory.