Nonsense can be defined as “an instance of absurd action.” That’s kind of how doctors described my cystic fibrosis (CF) mutations. It was as if my mom hit the New York Lottery and my dad hit the New Jersey Lottery on the same day at the same time. My…

Most adults with cystic fibrosis (CF) report experiences with painful or frightening medical procedures in childhood after their diagnosis, according to a U.K. study. These patients may benefit from psychosocial support from CF teams, who can ask about trauma in childhood in a safe and sensitive manner, researchers say.

I want to start this off with the disclaimer that I have never been a morning person. I am a night owl with a coffee addiction and a second-shift job. However, there is much more to the story. Several months ago, I noticed myself starting to frequently use the phrase…

I have been in a huge rut for quite a while due to my health. I think people often have the perception that I’m always positive and happy. It’s probably because I often take a step back or hide when I’m not feeling so happy.

I was shocked recently when my social worker brought up for the first time the subject of social security disability insurance. I am currently working three jobs. As she spoke, I had many thoughts flying through my mind with nowhere to land. We…

Growing up with a terminal disease, it was not a secret that one day I would become disabled. What I didn’t expect was how messy the process would be. There’s no handbook or guide about how to become disabled. It’s not as though one day you wake up…

You’ve somehow found someone to walk through the life that is a cystic fibrosis life without scaring them off. Great! Now, how the heck do you go about planning a wedding that is fun, special, and undamaging to your health? This is a dilemma that I dealt with…

Guilt. It’s a feeling I’ve had to process a lot lately. It’s something we all deal with from time to time. Maybe it’s due to a forgotten meeting, the dirty dishes piled up in the sink, or stumbling to bed without a kiss goodnight. Things happen, we are…

Cystic fibrosis has slowly, but surely, been creeping and nosing into parts of my life previously untouched. Just the other day I was watching a morning routine video on YouTube. All I could think was, “Wow. That looks like such a nice and productive morning. I should…

As I sat down to write my column for this week, a massive wave of writer’s block hit me. This has been plaguing me for a while. Great timing, right?! I started five different column pieces, each of which I would get a solid start…